Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at 25 weeks gestation. Due to his very early arrival, he has a laundry list of diagnoses. He’s now 17 months and I only recently saw “medically complex child” written in his medical record. Interestingly enough, it immediately made me think of The Rare Life and I scanned for an episode I could relate to and began to listen [once again]. Being the mother of a micro-Preemie has plenty of challenges, and while I know we’re extremely lucky that our son will grow out of most of those challenges; for the time being listening to other Momma’s of medically complex kiddos on your show has made me feel seen and heard in a way that I just haven’t found in my own community. Thank you for your thoughtful content and the time you take to find experts/personal stories that resonate so much for us Mommas of medically complex kiddos.

I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!

I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean real love.

Thank you for sharing this episode and Alexis, for sharing your story. I needed to hear this. Thank you.

I have enjoyed listening to my first few episodes. As a mom of a daughter with multiple diagnoses I have found much to connect with. Thanks for sharing your heart.

So many good subjects and so good to know we are not alone. Thank you for your hard work to bring these podcasts to us and help us feel less alone!

If you’re in anyway involved in the life of a child with disabilities or medical complexities this is a great listen. And a great way to find community!

Life as a parent of a child w disabilities is one of the most unique experiences that literally only other disability parents can relate to. I love how each podcast is relatable but also how it can help others who don’t know the struggle.

Finding a community is essential for parents of kids with rare diseases! This podcast has been a great complement to the other wonderful people I’ve connected with on social media who are navigating a similar life. Empowers me on my good days and helps lift me on up my difficult days!

It’s so nice being able to relate to another family with everything medical moms go through! Highly recommend!

Finally a place I can go to just be heard and seen, I appreciate this podcast in so many ways. I don’t feel so alone. 💜

This podcast gives a voice to my feelings! It’s so relatable and refreshing to hear other stories like mine.

Love! Rare parents need someone in their corner who “just gets it”

This podcast is such a game changer for me. Parenting a medically complex kid is hard and isolating, but these episodes help me to remember that I’m not alone. I loved finding a sense of community in this series!

Thank you for creating this podcast. It feels less isolating to hear other stories of parenting a disabled child. I find something to relate to on every episode.

The best thing to happen for my mental health since receiving my sons diagnosis… finding this podcast!

This podcast is a breath of fresh air. When having a child with medical complexities the easiest everyday tasks can be overwhelming. Madison does a great job with providing knowledge and creating a virtual table for all of us special needs parents to sit around and be apart of.

This is the best podcast for education on children with rare conditions and what their life might look like. I feel like I have a group of friends that I am surrounded by because the topics are things I am dealing with and going through. When I am having a hard day this podcast helps lift my spirits. I even told my parents and in laws to listen to better under and what our family is going through.

This show really sees every person in their journey in these difficult lives. It helps us to feel more seen and also know we aren’t alone.

I have loved listening to this. The episodes are so thought out and cover so many subjects. I recommended this any parents going through this crazy world with medically complicated kiddos or any friends/ family that can relate and love to learn.

The Rare Life has been the support and has given me strength and knowledge that I needed on all the tough days of parenting a child with a disability. The episodes are so well done, I look forward to listening every week!

This is what I’ve been missing in my life since we found out our daughter has a rare disease. When I feel like the closest people to me still don’t understand this life, I know I can feel seen here. Thanks for keeping it real!

I was hesitant to listen for months because I felt like my whole life was already consumed by this life, but it was such a refreshing outlet because I finally didn’t feel alone.

This podcast is everything I needed to hear this year after my son was diagnosed with a rare genetic condition during a global pandemic. When I was feeling lost, alone and confused, this podcast featured moms, therapists and people who just understood all of the feelings I had. This podcast will make you laugh, cry, embrace your inner warrior self and learn how to enjoy the journey of life with your child even more. Even if you don’t have a child with needs or a rare diagnosis, this podcast teaches you how to be a better friend, better parent and better advocate for those around you. Thank you so much for all you do Madeline!!

Thank you for your work

So encouraging! Thank you for making us feel lie we are not alone

This podcast has literally saved me. It’s one of the only I listen to. It helps me remember that I’m not alone and people DO understand. It is a must listen for all.

Madeline not only covers the good, but she also covers the hard things of being a mother of a child who has a disability or disabilities. Her podcasts are friendly reminders that there are others in the thick of it. We may not be going through the same things, and we all handle our things differently, but we are in it together. Appreciate her and her advocacy.

So grateful I found this podcast. It’s been a huge blessing to me as we just found out my son’s rare genetic condition. Thank you!

So thankful to have found this podcast. As a mom to kids with disabilities it’s easy to feel isolated and alone. Nice to have other mamas who get it!

This podcast is like having a friend to talk to talk to about all the complicated emotions and logistics of navigating life as the parent of a medically complex child. I find myself nodding along (and then re-listening) to basically every episode.

Love this podcast. Madeline and her guests are so relatable to medical moms and moms with disabled children. Helps me feel supported through this motherhood journey.

This podcast helps me feel less alone in my journey with two medically complex girls. Thank you for what you do!

Having a child with a rare syndrome can feel so isolating. I find myself listening when I need an outlet to feel like I am not alone and that there are other parents and families out there experiencing the same things that mine is! I would also recommend family and friends listen to get some insight on things our family goes through.

I felt a huge relief after I found Madeline, and her podcast. I feel seen and validated. Love it

I love the Rare Life Podcast. Their content is so relatable and they aren’t afraid to talk on tough conversations. I think this is a great podcast for newly diagnosed parents of a medically complex child or one’s who have been in the medical world for a long time! Highly recommend!

this is THE BEST podcast for medical parents, not only does it make you feel less lonely in this life, it gives you different perspective and outlooks on different situations! i love it so much!

So wonderful to listen to someone who fully understands and lives this life along side you. I feel seen and validated! Thank you!

This podcast has been a lifeline during challenging seasons of our daughter’s life. I always feel seen, validated and loved when listening to these episodes. Madeline does a great job of sharing different views and it’s great to hear the different perspectives. Huge supporter!

So happy I was told about this podcast, thank you for all that you do!!!

Super relatable and helpful podcast for parents of kids with special needs. Thanks for all your hard work, it is making a difference. :)

Wow. In a world that feels so isolating, this podcast has brought me life, a community, and support. The way that Madeline relates to her listeners is so valuable and the topics are so unique and relevant! I can not say enough good things!

I am a mother of a child with a rare syndrome. I live in a small town and don’t know anyone in my town with a rare diagnosis. Listening to Madeline and her guests every week help me feel not alone. Their stories help me feel seen. I find myself nodding in agreement every week. If you have a rare diagnosis or love someone who does this podcast is a must listen to.

I work as a CNA on a medical floor and I am in nursing school. I LOVE this podcast as a way to connect with how some of the families and caregivers are feeling. I’m a parent too and always love hearing the love that shines when parents talk about their kids.

When listening to the The Rare Life, I constantly find my self nodding my head in camaraderie with Madeline and the guests. It is so very comforting to hear many different people sharing about the realities of their lives as they navigate all aspects of caregiving for children with a rare disease. I appreciate the honesty, the authenticity, the willingness to be brave and vulnerable. Hearing the similarities of my life in the stories of others has been both encouraging and empowering. I deeply appreciate this podcast and the compassionate perspective that Madeline brings to each episode.

I stumbled upon The Rare Life podcast shortly after my son received his CTNNB1-syndrome diagnosis and wow did I find it at just the right time. This podcast has helped fill my empty cup in a way that only a special needs mama would understand. I was feeling very isolated and like nobody understood what I’m going through, but as soon as I listened to a few episodes, I felt SO seen. Listening to Madeline is like chatting with an old friend over coffee. She’s so conversational, honest and covers an array of topics that are so helpful for parents of children with disabilities. I always appreciate her perspective and the perspectives of the guests she brings on the podcast. I feel encouraged and more informed after every episode. I look forward to listening every week!

I am a mother of two, and my younger son has a myriad of medical challenges associated with a very rare genetic variation. I had been unable to find a community of people to connect with - really connect with. After hitting the breaking point emotionally, I thought - try social media! I got on Instagram and began a seeking connection with other parents. Enter Madeline’s podcast! When I found the podcast, I was shocked in the best of ways. This! This is exactly what I was looking for. I’m so amazed, grateful and inspired by Madeline and will forever be thankful that she chose to produce The Rare Life. 💜

Mother of 2 beautiful littles, second (2.5) having a rare superpower genetic disorder and it’s been....well....tough. Listening to your podcast feels like you’re reaching into my soul and I finally feel less alone. I think therapy is so SO important but what if you’re in the stage when you can’t afford therapy, both financially and time wise? (Bc this community knows not just anyone care for our rare super humans!) And this is where your podcast has truly helped so much, the content, so on point of course, but even just the freedom and flexibility (which is one thing I sometimes feel robbed of) to listen WHEN I can. So just, THANK YOU!

MADELINE is so easy to listen to and I adore her personality and how it shines through. Her love for her kids is so evident and she brings such a great perspective to the special-needs, rare life world. This is a must listen for all parents.

I have a (almost) three year old daughter with Williams Syndrome and after just listening to the preface I feel such a connection and I felt like you could be telling my own pregnancy and birth. I am hooked an so excited to listen to more! Thank you for giving me a place to feel less alone.