We so often see our Executive Director Carole Bakhos in an official capacity, now we get to hear from her as Mom. We sit down and have a beautiful, open, uplifting and poignant conversation about her journey as Mom to Yara and so much more. Sometimes your journey takes a right turn and you wouldn’t [&#8230;]

A Rare Reality – Season 4, Episode 9: JGA Family Stories - A Conversation with Sharon Elliott

We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.