She’s a gem! You’ve probably heard her before but this time it’s to tell her family story! Michelle Fruhschien is back to talk about diagnosis, dealing with the day to day, intensive therapy (which is doing amazing things for her daughter), life, advocacy, you name it!! She’s 30 minutes of pure sunshine and this pod [&#8230;]

A Rare Reality – Season 4, Episode 8: JGA Family Stories - A Conversation with Carole Bakhos

We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.