Patience, kindness and a willingness to never give up and do anything for her family. Sharon shares with us the ups and downs of years of waiting for a diagnosis for their son, managing a teenager, planning for the future and what her hopes and dreams are for the for their son and all of [&#8230;]

A Rare Reality – Season 4, Episode 10: Family Conference Q & A

We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.