Another addition of telling our family’s stories and this time it’s a Dad’s voice! Nils Marchand, Dad to Ollie tells us all about his family’s journey with Jordan’s Syndrome. We dive into why he felt the pull to give back to JGA and his messages to all of you as a Dad about this journey [&#8230;]

A Rare Reality – Season 4, Episode 7: JGA Family Stories, Michelle Fruhschien

We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.