
We kick off a new century of podcasts with one of the newest additions to the WSA staff: Vice President of Programs Laura Spinney. Laura shares her extensive background working in disability advocacy and as a parent to her adult daughter with WS. She also gets into the details of the WSA's latest program: The Family Network.
For more information on the Family Network, go to https://www.williams-syndrome.org/familynetwork and if you're interested in applying for an Area Lead position or a State Lead position, click through to the position descriptions!
Convention merch is available in the WSA Store! Go to https://shopwsa.org/ and get your swag now!
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Jun 9
35 min

1-0-0!!!!
For our 100th episode, we celebrated a milestone live on the Weekend for Williams Broadcast. Jen couldn't join us this time, so Joel sat in to help Brenden lead the conversation. Together they welcomed two wonderful guests: Dr. Mo Helgren of the Frank H. Netter School of Medicine and her student Camilo Zeballos Carvajal, a fellow musician and rare disease advocate. The discussion explored how the next generation of doctors is learning to care for people with rare conditions, and how a shared love of music can open the door to that work.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Jun 2
58 min

Nine-nine!!
For the last show before we hit the century mark, we're joined by a guest a refreshing as a tropical breeze. Jules Warren is a Chicago transplant to Hawaii, and uses her people skills working at Depo Market (@depo_market). Joining her is Tiffany Chou, the founder and owner, who, as she says in the interview, "doesn't take no for an answer," so when she told Jules she wanted her to work at her store, there was no looking back. Learn more about the shop at depomarket.org.
Please join us on the 30th & 31st on Facebook, Instagram, and on YouTube for the 2026 Weekend for Williams Broadcast-a-thon! The recording of the 100th episode will happen live that weekend.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
May 26
39 min

From Emperor Palpatine to the King of Pop, Josh Beaupre is a born entertainer. He joins Jen and Brendan this week to talk about his love of voices, entertaining, and what goes into being an impersonator. Josh also leads a frank discussion about how he has dealt with bullying in his life - most notably from within the WS community.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
May 19
31 min

Awareness Month keeps rolling on this week with two very special guests: Dr. Elizabeth Roof and Dr. Elisabeth Dykens from Vanderbilt Kennedy Center. They are the driving force behind the Academy of Country Music Lifting Lives music camp in Nashville which has been changing the lives of adults with WS as well as some of Country Music's biggest stars for over 20 years.
They join their old friend Brendan (along with Producer Joel filling in for Jen) to discuss the relationship between WS, anxiety, and music. When the first two team up, it's often music as the panacea for splitting them up again.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
May 12
37 min

Happy Williams Syndrome Awareness Month!!
We're kicking off this great month with the wonderful Kara Jackson. She joins Jen and Brendan to discuss her love of acting and her upcoming production of The Sound of Music at Backlight Productions. As someone who traveled around a lot when she was a kid as part of a military family, Kara speaks openly about the different types of anxiety one can experience and how it's important to power through and get that applause!
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
May 5
40 min

It's a quickie episode this week as Brendan (who is literally tiptoeing through the tulips) and Joel prepare for May - which is, of course, Williams Syndrome Awareness Month.
You can find resources to share with others in the WSA Awareness Month Toolkit.
We're also joined from the tulip field by Anne Lemieux to discuss her new book of fiction "See the Music, Hear the Light." Find out more and purchase your copy at seethemusichearthelight.com.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Apr 28
13 min

This week we're joined by Amy Berg from just outside Philly on the Jersey side. Amy is an OG person with WS (diagnosed before there was genetic testing) and has seen this community grow and change over the years. She spends a lot of time with her friends on The Dream Team, which is a group of our older community members. They frequently get together online, travel together, and hang out together at the convention!
Amy and Brendan both were in attendance at the Armellino Center of Excellence for Williams Syndrome at the University of Pennsylvania and CHOP this past weekend to see a talk given by future podcast guest Mark Levin and Sarah Schaefer on Sudden Cardiac Deaths in WS. They share their takeaways from a very informative presentation.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Apr 21
27 min

This week is part 2 of our chat with Dr. Beth Kozel and Dr. Jessica Bowman from Nationwide Children's in Ohio. Together with Jen and Brendan (and Producer Joel sneaks in there too), they discuss the research being done to improve elastin in people (which would be a big plus for people with WS), the importance of language and remembering to be diligent, and, of course, the importance of water in the overall health of a person...especially with WS.
General hydration information: Staying hydrated is important, but individual fluid needs vary based on age, body size, activity level, health conditions, medications, and local climate. This information is general in nature and not medical advice; always tailor water intake to your personal needs and consult a healthcare professional for guidance specific to your health circumstances.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Apr 14
40 min

A - B - H. A - Always, B - Be, H - Hydrated. Always be hydrated! Always be hydrated!!
If you thought water was just this thing that happens to make up around 60% of your body and 70% of the Earth's surface, well you'd be wrong. And if you got it wrong: drink some water!
This week is part 1 of our chat with Dr. Beth Kozel and Dr. Jessica Bowman from Nationwide Children's in Ohio. Together with Jen and Brendan, they discuss the relationship between an individual with WS and their cardiologist and what exactly a cardiologist is looking for when they're testing a person with WS versus a person without WS and, of course, the importance of water in the overall health of a person...especially with WS.
General hydration information: Staying hydrated is important, but individual fluid needs vary based on age, body size, activity level, health conditions, medications, and local climate. This information is general in nature and not medical advice; always tailor water intake to your personal needs and consult a healthcare professional for guidance specific to your health circumstances.
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
Apr 7
38 min
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