On this special episode we are having a roundtable discussion from our recent attendance of the NHS Disability Summit 2021 that took place just a few weeks ago   We are joined today by Kieranne Page, a Clinical Nurse Specialist in Sexual & Reproductive Health and also Sharon Hudswell, Assistant Service Manager for Medical Education - who are also the co-chairs of the Guys & St Thomas NHS Trust Staff Disability & Long Term Health Conditions Forum!   On this episode we play a few clips from some of the featured speakers from the Summit discussing many initiatives, desired policy changes, current research and also best practices and desires for the continued growth and support of the NHS with its endeavours to improve and identify many elements with NHS Staff working with disabilities and long term health conditions   This one is a feature length episode but we feel there is alot of useful information many will find very useful - as always, thanks for listening   TRANSCRIPTION FOR THIS EPISODE IS IN PROGRESS   If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email   DisabilityForumLeadership@gstt.nhs.uk   _________________________________________________   PLEASE FIND THE FOLLOWING LINKS SHARED BY THE SUMMIT   https://www.nhsemployers.org/disabilitysummit   Meet Amar Latif - "The blind guy who wants to show you the world" https://youtu.be/6ZsIRgNXwgk   https://diversityandability.com/     https://diversityandability.com/blog/how-to-foster-wellbeing-as-a-leader/ https://www.powtoon.com/embed/ekTPWdQGo01/   https://www.cqc.org.uk/guidance-providers/gps/gp-mythbuster-67-reasonable-adjustments-disabled-people   https://www.cqc.org.uk/sites/default/files/CM022109_Item9_WDES_report.pdf   https://www.bma.org.uk/media/2923/bma-disability-in-the-medical-profession.pdf   https://www.accessable.co.uk/guy-s-and-st-thomas-nhs-foundation-trust   https://hiddendisabilitiesstore.com/hidden-disabilities-sunflower-training   https://www.nhsemployers.org/articles/finding-my-voice-drive-change   https://www.nhsemployers.org/articles/supporting-disabled-staff-workplace   https://www.rcslt.org/policy/communication-access-uk/   https://communication-access.co.uk/   https://www.texthelp.com/en-gb/   https://www.equalityhumanrights.com/en/multipage-guide/employment-workplace-adjustments   https://www.purplespace.org/   https://www.rcn.org.uk/get-help/member-support-services/peer-support-services/neurodiversity-guidance   https://www.rcn.org.uk/get-help/member-support-services/peer-support-services

On this recording we are joined by Sharon Hudswell, Assistant Service Manager of Medical Education   This time we delve into a discussion regarding living with and understanding the Long Term affects of Coronavirus which is now more commonly designated separately as 'Long Covid'   Sharon speaks on her experiences contracting Covid-19, managing her symptoms, explainging intersections in regards to also having long term health condition and how she empowers herself to manage her conditions whilst also giving advice to others   It was a really insightful conversation to have with Sharon on to get a true understanding of just how impactful long covid can be on others.. let alone others with underlying long term health conditions, we humbly thank Sharon for sharing her story, thoughts and lived experiences in such a difficult period    Please do not hesitate to share your stories thoughts and ideas too - please check the links below for more information   TRANSCRIPT LINK - COMING SOON   ___________________________________________________________________________   If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email   DisabilityForumLeadership@gstt.nhs.uk   For Podcast enquires you can email - j.kofi@nhs.net     ************************************************   Please find below the links to articles / clips mentioned in this recording     Sky News Long Covid Video   https://www.youtube.com/watch?v=VDNCFCXg3Vg     Channel 5 Long Covid Video   https://www.youtube.com/watch?v=QB41J5aU9Ww     Long Covid NHS Page   https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/   https://www.yourcovidrecovery.nhs.uk/what-is-covid-19/long-covid/     The Long Covid Organisation   https://www.longcovid.org/

Welcome back to another editorial episode of FEEDBACK!   Our members and communities would like us to have a focus on Dyslexia ahead of Dyslexia awareness month in October and we are more than happy to oblige with Tips, Talks and a helpful guide that can be used to find assessment facilities here in the UK for diagnosing individuals who may have Dyslexia   Please look forward to our upcoming interviews with staff with lived experiences - until then please check out the following links highlighted during this conversation   _______________________________________________________________________________________________   Transcript link here - COMING SOON   What is Dyslexia https://youtu.be/zafiGBrFkRM   Tamara Thomas NHS - A Colleagues Story With Dyslexiahttps://youtu.be/dEpJQKvVU4o   The British Dyslexia Association Assessment Guide https://www.bdadyslexia.org.uk/services/assessments   Christian Boer  of dislexyfont.comhttps://youtu.be/qVaeGOflF7w https://www.dyslexiefont.com/en/typeface/   Dyslexia: The Superpower https://youtu.be/AMrUxxmMz8g   ...and tools mentioned in this podcast that can also help with Dyslexia   Dragon software has a very popular Dragon Dictation product, google has built in text to speech in the keyboard app GBOARD, MICROSOFT has added immersive reading in many of its applications as a reading feature, Grammarly.com, Speechify.com and the Reachdeck browser addon are exception tools that offer a free / preimum tiered approach for added support

On this recording we do a bit more of an editorial coverage episode - we are highlighting Voices in Autism / Aspergers Syndrome as this has been quite heavily requested in our forum meetings   We intend to follow up on this subject with guests / allies for the further support and education of Autism awareness but for now we have been forwarded some great content we want to share with our audience   This podcast only contained snippets of the longer conversations / talks - please find full links below    PODCAST TRANSCRIPT -  https://archive.org/details/feedback-04   __________________________________   01. World Autism Awareness: A Message from Claire Murdoch | NHS   https://youtu.be/ijLLSM5nDSI   02. Autism: Graeme's story | NHS   https://youtu.be/yKT3swmn_wc   03. Autism and Aspergers: 5 intriguing differences (YOU need to know)   https://youtu.be/0bACSPzN1xY   04. Women and Autism. Towards a Better Understanding | Sarai Pahla   https://youtu.be/_MA7o6FgPRU   05. Why Everything You Know About Autism Is Wrong | Jac den Houting   https://youtu.be/A1AUdaH-EPM   OTHER RESOURCES MENTIONED   NHS PAGE  -  https://www.nhs.uk/conditions/autism/   National Autism Society  -  https://www.autism.org.uk/   https://www.awarenessdays.com/     http://www.national-awareness-days.com/       https://www.pat.nhs.uk/working-for-us/Equality/Resources/EDI%20-%20Interactive%20Calendar%202021.pdf     https://www.nhsemployers.org/events/calendar-national-campaigns     Email address for the podcast en quires: j.kofi@nhs.net   To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk   Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

Today we are joined by a member of staff from Guys & St Thomas hospital trust who is dealing with having chronic and severe long term migraines   Our guest prefers to remain anonymous while they discuss how they cope with constant headaches and migraines as a long term health condition   We discusses the physical and mental effects this condition can cause as well as the challenges / outcomes this has presented in their current role   We lastly get specific with medicines involved to help control these conditions, new and promising prevention trials and even a charity that can help others in similar situations that may find such information helpful   ___________________________________   Please find below links / resources mentioned during this conversation   Podcast Transcription - https://archive.org/details/spotlight-3-migraines   The Headache Channel  (YouTube)   https://www.youtube.com/channel/UCWtLYWoWW5Teahm0Cwu_VIQ   The Migraine Trust Website   https://www.migrainetrust.org/   AJOVY & EMGALITY DETAILED INFORMATION FOR PATIENTS   https://www.nationalmigrainecentre.org.uk/migraine-and-headaches/migraine-and-headache-factsheets/cgrp-and-anti-cgrp-injections-for-the-prevention-of-migraine/   Email address for the podcast en quires: j.kofi@nhs.net   To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk   Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

On this recording Cherron joins us to speak about her ongoing initiative of helping organizations execute and utilize the power of Staff Networks. Cherron talks about her book “The Incredible Power of Staff Networks” which is a very thorough guide on how to form, sustain and maintain a Staff Network as well as her further related efforts on the national ‘Staff Networks Day’ and much much more!   ___________________________________   Please find below links / resources mentioned during this conversation   Podcast Transcription - https://archive.org/details/feedback-03-transcription   https://nationaldayforstaffnetworks.co.uk   https://www.thepowerofstaffnetworks.co.uk/   https://www.thepowerofstaffnetworks.co.uk/online-store   POSN Youtube Channel https://www.youtube.com/channel/UCpmHAOm1QZMupQi4ld7qx8A/featured   She's The Boss Interview - Female Entrepreneur Stories: Cherron Inko-Tariah https://youtu.be/IwS8WUAjB5M   The Incredible Power of Staff Networks Amazon Book Link https://www.amazon.co.uk/Incredible-Power-Staff-Networks/dp/191012561X   Twitter: @POSnetworks   Email for the giveaway - j.kofi@nhs.net - remember this giveaway is first come first claim!   To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk   Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

On this recording we have Vaughan Parsons - a research manager in the occupational health service for Guy’s and St Thomas NHS Trust. Today he discusses with us his work on the creation of a new Staff Network.   The NHS Stammering Network is an upcoming community we are very exited to support and see come int fruition. Vaughan talks about its development so far as well as his experiences, thoughts and research on Stammering   Please find below a copy of this podcast's transcript and also links to the highlighted points we want to signpost   Podcast Transcript - https://archive.org/details/feedback-02-transcripted   BBC Documentary - https://www.bbc.co.uk/iplayer/episode/m000t27y/i-cant-say-my-name-stammering-in-the-spotlight   BBC Documentary YouTube Link - https://youtu.be/HgskTBGqKq8   Follow Up Interview by Stamma - https://youtu.be/dcOo1gVgRVA   Stamma, the British Stammering Association - https://stamma.org   The NHS Stammering Network Website - https://nhsstammeringnetwork.uk   To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

On this recording we have  Ramze, who shares his unique experience as a partially sighted employee. We discuss how he navigates life in general, gives us tips with the tools and software he uses within his role, talks about his experience as an apprentice within the trust  and how he keeps an overall positive attitude even under hardships and challenges   Transcript link here - https://archive.org/details/spotlight-02-ramze   Links also mentioned in this recording...   Metro Blind Sports - https://www.metroblindsport.org   For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

On this discussion Jenny shares her life experience with long term health conditions, overcoming various obstacles and her continuing positive strides within her overall career as well as the actual founding of our very own GSTT Staff Disability & Long Term Health Conditions Forum.   Transcript link here - https://archive.org/details/spotlight-01   For  more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

On this recording we have a focused discussion on Disability Disclosure / Disability Awareness Week 2020   Please find the links to the transcript and featured / signposted content below   Podcast Transcript -  https://archive.org/details/feedback-01-transcription   Understanding Disability Disclosure / Awareness Video - https://youtu.be/NJ5nhpBzTao   An interesting brochure on Disability Disclosure / Awareness -  https://www.ucu.org.uk/media/5445/Disclosing-a-disability-UCU-guidance/pdf/Disclosing_a_disability.pdf   For  more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk