The Generation Lyme Podcast
The Generation Lyme Podcast
Generation Lyme
The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone. Generation Lyme is a community built to empower people facing Lyme disease. We host online Meet-Ups several times a week for patients, parents, partners, and supporters. Find us online at https://genlyme.org.
Life Between What Feels Like Nothing & Looks Like Everything - Ep 21
In this episode, we explore how self-care can evolve for people living with Lyme disease and discuss what it’s like to navigate a world that views health and illness in black and white.Brooke shares why he’s running the NYC Marathon this year, and what it means to represent the Lyme community on that stage. We also discuss the importance of celebrating every win, no matter how small.To wrap up, we introduce a candid new segment: “What’s the Craziest Thing a Doctor Has Ever Said to You?”This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from ⁠Generation Lyme⁠—a nonprofit organization that provides community for people facing Lyme disease. If you enjoyed this episode, please consider subscribing, rating, and reviewing The Generation Lyme Podcast on Spotify, Apple Podcasts, or your favorite platform. You can also watch the full episode on YouTube.
Sep 10, 2025
57 min
Doing Our Best - Ep 20
After a long hiatus, The Generation Lyme Podcast is back!In this episode, our board members reintroduce Generation Lyme for anyone who is new to the community, check in about where we are in our health journeys, and share what advice we would give to newly diagnosed patients.This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from ⁠Generation Lyme⁠--a community for people facing Lyme disease.Please like, rate, and review The Generation Lyme Podcast! Your subscriptions and reviews help the podcast grow. Stream the audio version of The Generation Lyme Podcast on Spotify & Apple Podcasts and watch on YouTube.Connect with us at ⁠genlyme.org⁠.
Apr 10, 2025
49 min
Communicating About Lyme Disease - Ep 19
There's so much to say about Lyme and other tick-borne diseases. As individuals and as a community, we fight hard to explain what we're going through, what Lyme disease is, what we need for things to get better, and a lot more. Combined with complex social dynamics that come up when you get sick, plus potential personal communication issues that people with Lyme often have due to neurological symptoms, the whole thing becomes a lot to unpack. That's why we wanted to talk about it! It's also why we (at Gen Lyme) provide the resources we do to help people communicate on an individual and community basis--to help all of this get a lot easier. This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from ⁠Generation Lyme⁠--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at ⁠genlyme.org⁠. Join the Gen Lyme community on Instagram!
Jul 12, 2023
58 min
How to Set Boundaries When You Have Lyme Disease - Ep 18
Has Lyme disease made it harder for you to set & maintain boundaries? Has it complicated your relationships with people and made it harder to communicate and feel heard by the people in your life? If so, you're not alone--and this episode is for you. We talk about our experiences setting, communicating, and changing boundaries through our Lyme journeys, and we share tips that may help you navigate what you’re going through. This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at genlyme.org. Join the Gen Lyme community on Instagram! For more tips on navigating Lyme/illness and boundaries, check out our ⁠Love Languages Blog⁠.
May 8, 2023
53 min
Why Lyme Stories Matter - Ep 17
Has another person's Lyme story helped you in your journey? Has a story of any kind (a favorite movie, tv show, book, etc.) helped you get through a hard time? If so, you're not alone. Join us for this incredible conversation about how stories have shaped and changed our lives. We share how sharing our own Lyme stories has helped us heal and find community—and why we're so passionate about helping others share their stories.  If you want to share your story with the Gen Lyme community, email us at [email protected]! This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at genlyme.org. Join the Gen Lyme community on Instagram!
Mar 26, 2023
57 min
Reflecting on Recent Lyme News, Treatment Plans, & Our Progress Together - Ep 16
Around times of illness, reflecting can bring all kinds of emotions. Some phases bring heartbreak. Others are cause for celebration. In every part of our journey, it can be helpful for us to reflect. Sometimes, we have to step back to see how we're moving forward. Other times, stepping back to reflect helps us see the whole picture. Whatever comes up for you when reflecting (or just seeing the word), it’s ok. In this episode, we talk about all of it: personal reflection, Lyme disease representation, and our commitment to the Lyme community. Content warning: discussion of a recent news story covering a Lyme disease death. The story: Maine hospital ordered to pay $6.5 million for wrongful Lyme death. We're thinking about Peter Smith and his family. Other notes: If you notice an abrupt topic switch: we had a technological glitch & took a half-hour break during recording. This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from ⁠Generation Lyme⁠--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at ⁠genlyme.org⁠. Join the Gen Lyme community on ⁠Instagram⁠!
Feb 24, 2023
54 min
Change is hard. So how do we navigate it? - Ep 15
Many things in life can make us (and our loved ones) change. Lyme disease is one of them. So what do we do, how do we feel about it, and how can we navigate it? This episode covers *many* of the changes we have gone through and how we feel about them: treatments (herbs, antibiotics, SOT), lifestyle (alcohol, school), relationships (so much info for supporters!), perspectives (mindset), and a lot more. We also answer a question from a parent.  Change can be necessary, welcomed, scary, and uncertain--and all at the same time. We're here to talk about all of it. This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at genlyme.org. To find resources for Lyme supporters (including tips on how to help your loved ones & Gen Lyme Meet-Up info), visit genlyme.org/blog-for-supporters. Join the Gen Lyme community on Instagram!
Jan 15, 2023
54 min
Coping When Lyme Makes Life Feel Out Of Control: "What Are We Gonna Do Without Bagels?!" - Ep 14
Have you ever struggled with control issues (either your own or imposed on you?) If so, you're not alone. Control issues are extremely common in the Lyme/chronic illness/disability communities (and so many others), yet they aren't talked about nearly as much as they should be. This episode tackles a huge topic we deal with on a daily basis in a variety of ways, covering everything from Lyme rage episodes, dietary and lifestyle adjustments, relationships, chemical sensitivities, *laundry,* and advice for what to do when everything feels overwhelming. And, to stay on theme, there may even be a moment where this episode about "control" goes off the rails just enough to land us in a laughing fit. We hope you get something out of this one! Content warning: discussion of food, disordered relationships with food, and mention of eating disorders. This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube. Connect with us at genlyme.org. Join the Gen Lyme community on Instagram!
Dec 5, 2022
56 min
Let's Talk About Vulnerability: Asking For Help & Sharing Stories - Ep 13
When you have Lyme disease (or any chronic illness), vulnerability is an everyday part of life. Still, embracing your vulnerability on an emotional level can be challenging. In this episode, we discuss our personal journeys with vulnerability: how it's challenged us, helped us heal, and what we recommend to people facing similar situations. This episode features Rivka Savage, Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben (host) from Generation Lyme--a community for people facing Lyme disease. Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Generation Lyme is a community to empower people facing Lyme disease. Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms. Connect with us at genlyme.org. Join the Gen Lyme community on Instagram!
Nov 4, 2022
1 hr 1 min
Gen Lyme Day 2022! We Talk About Compassion & Answer Your Questions - Ep 12
In this special episode, Jesse Ruben, Brooke Stoddard, Haley DiBiase, and Jennifer Hoffmann (the Gen Lyme Board) meet for the SECOND-ever in-person, live recording of The Generation Lyme Podcast to talk about Generation Lyme Day, a brand new holiday to celebrate the people of the Lyme community. We chat about the monthly topic - compassion - as well as answer some questions sent in by community members. Don't miss this one! We celebrated Gen Lyme Day this year on September 24, 2022. Click here to learn more about Gen Lyme Day. To read about why we created Gen Lyme Day, check out this article. For more information on Generation Lyme, visit our website.
Oct 13, 2022
52 min
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