In our latest episode of the FL COMMUNITY PODCAST, we are pleased to welcome Sally Hurman from @gettingstuffdoneinheels. Sally’s husband Gav was diagnosed with Follicular Lymphoma in late 2014. She joins us to discuss not only the impact of an FL diagnosis, but also its effect on loved ones and carers. Follow Sally Hurman! https://www.instagram.com/gettingstuffdoneinheels?igsh=YnFvMTE4d2Q1bzNj https://substack.com/@sallyhurman?r=3vkc9o&utm_medium=ios&utm_source=profile&utm_content...

In this bitesize episode, we take a moment to catch up after the holidays and reflect on the start of a new year. We share a few personal reflections, talk through our New Year intentions, and give you a sneak peek into what’s coming up on the podcast in the months ahead. We also open the door wider to you, our community — inviting your ideas, questions, and suggestions for future episode topics and guests. This podcast is shaped by the real experiences of people living with follicular lymph...

In this special holiday edition, Nicky, Paul, and Nicola open up about their own challenges during the festive season and offer simple strategies for managing energy, emotions, boundaries, and expectations. A supportive guide for anyone facing the holidays while living with FL. Send a text Please send your comments, questions and feedback to: [email protected] Here are some other websites that might be useful: Living with Follicular Lymphoma Facebook Group The Follicular ...

In this very special anniversary episode — recorded in person at the Meta offices in London — founder of the Living With Follicular Lymphoma (LWFL) community, Nicky Greenhalgh, and founder of the Follicular Lymphoma Foundation (FLF), Nicola Mendelsohn, come together to celebrate 10 years of LWFL. For the first time side-by-side, Nicky and Nicola reflect on how they first connected through Facebook and how their journeys, work, and friendship have evolved over the past decade. They share hea...

In this episode, Nicky, Paul, and Nicola sit down with Dave Harrison to talk about his remarkable journey with follicular lymphoma and his experience on a bispecific antibody clinical trial. Dave also shares what it was like working with Nicky as his nutritionist while preparing for treatment — and how small changes in nutrition, mindset, and daily habits made a big difference along the way. He opens up about the reality of being part of cutting-edge research — the physical challenges, the e...

In this moving episode of The FL Community Podcast the team sit down with Charlotte Cox — founder of Lymphoma Out Loud — to explore what it really means to self-advocate as a patient. Charlotte was just 27 when, after two years of being misdiagnosed, she was told she had stage 4 follicular lymphoma. What followed was a journey marked by courage, persistence, and purpose. From fertility preservation and chemotherapy, through relapse and recovery, Charlotte has transformed her frustration at de...

In this extended episode, we open up a conversation that’s often overlooked: the emotional and psychological impact of living with FL with insights from our resident psychotherapist, Dr Paul C. Mollitt. From the uncertainty of “watch and wait” to the ripple effects on relationships, we share personal experiences, explore how cancer intersects with existing mental health challenges, and highlight therapy, peer support, and coping strategies. Our aim is to reduce stigma, provide practical tools...

In this episode, we’re joined by Simon, a long-time member of the Living with FL community whose story is marked by resilience, grace, and determination. First diagnosed with diffuse large B-cell lymphoma in 1999 and later facing a relapse as follicular lymphoma in 2017, Simon has endured not only cancer treatment but also serious health challenges including heart failure and a stroke. Despite these twists and turns, he continues to live with purpose as a patient advocate and community suppor...

In this episode, the team discuss how to cope with common treatment side effects across the major treatment protocols of FL, focusing particularly on diet, exercise and mental health. Send a text Please send your comments, questions and feedback to: [email protected] Here are some other websites that might be useful: Living with Follicular Lymphoma Facebook Group The Follicular Lymphoma Foundation Robert Miller's comprehensive collection of resources built over decades...

In this episode, the team discuss the sometimes confusing FL treatment protocol of 'Watch and Wait' and how to cope with this period psychologically, physically and nutritionally. Send a text Please send your comments, questions and feedback to: [email protected] Here are some other websites that might be useful: Living with Follicular Lymphoma Facebook Group The Follicular Lymphoma Foundation Robert Miller's comprehensive collection of resources built over decades on ho...