Do you have to fight everyone around the table to advocate well for your child? Many parents feel intimidated by disability advocacy. They worry they're not doing enough and don't know enough to be a good advocate for their child and a good teammate to the other people in their child's life. Researcher Meghan Burke joins Amy Julia Becker to share what non-adversarial advocacy looks like—from special education and IEPs to the transition into adult disability services—and where to find support ...
Sep 16
31 min
Overwhelmed, isolated, afraid of the future? You don't have to figure it all out at once. Author Misty Coy Snyder joins Amy Julia Becker to talk about family life and disability. She shares practical encouragement for parents and caregivers, including ways to: Find community and build meaningful connectionsFocus on what matters right nowMake room for joy00:00 Introduction to Misty and Her Family 03:09 Why "Happiness is Down Syndrome"? 07:17 The Role of Community in Parenting 11:02 Creating Co...
Sep 9
27 min
How can my child with a disability learn and grow? What does it look like to cultivate capability while honoring their limitations? When am I wrongly making life easier for them? When should I let them struggle? And what if I feel incapable as a parent? Therapist David Thomas joins Amy Julia Becker to discuss: parenting in an anxious agebuilding resiliencehelping children develop coping skills and confidence00:00 Introduction to David Thomas 03:13 Why Now? The Rise of Anxiety and Youth Mental...
Sep 2
29 min
When your child needs support now, “just wait” isn’t good enough. Chris Cipriano, mom and developmental psychologist, helps parents of children with disabilities move from frustration and apology to confident advocacy. She shares with Amy Julia Becker how to: navigate waitlistswork with teachers and providers as partners, not opponentssee disability as a different vantage point and a source of valueDiscover how an asset-based mindset can help you advocate for your child and create change that...
Aug 26
26 min
Parenting a child with a disability can feel overwhelming, isolating, and uncertain, but you don’t have to figure it out alone. Take the Next Step offers encouragement and practical guidance for navigating disability parenting, finding connection, advocating for your child, and creating more joy at home. Join Amy Julia Becker and fellow parents, therapists, researchers, and disability advocates for short, hope-filled conversations and meaningful, manageable steps toward a thriving future for ...
Aug 19
2 min
E25—What do you do when the child you imagined isn’t the child you have? Pastor Mike Erre experienced the slow dismantling of achievement-based parenting when his son with Down syndrome was born. If you’re exhausted by comparisons and milestones, this conversation invites a different way forward: noticing, delighting, and being with your child as they are. 00:00 Introduction and Personal Stories 03:06 Connecting with Your Child 06:54 Redefining Success and Celebration 11:40 Navigating Grief a...
May 6
29 min
E24—"I don't know what life can look like for my child." If you've ever felt that, this episode is for you. Sheli Reynolds, PhD, is a leader in disability innovation. She joins Amy Julia Becker to share free, practical tools that support individuals and families experiencing disability in planning for friendship, independence, employment, and joy. 00:00 Dr. Sheli Reynolds and Disability Advocacy 03:40 Understanding the Lifecourse Framework 09:15 Tools for Envisioning a Good Future 12:29 Perso...
Apr 29
27 min
E23—The meals stop coming. The texts slow down. And suddenly you feel like you’re navigating disability alone. Friends can be great at showing up in a crisis, but how do you find community for your family when life stays hard day after month after year? Katherine Wolf, stroke survivor, mother, and disability advocate, shares her story with Amy Julia Becker. They consider: GriefLimits of toxic positivityFinding community that helps families survive and flourish00:00 Introduction and Connection...
Apr 22
28 min
E22—Is having a sibling with a disability hard on kids? Researcher Meghan Burke has spent years studying (and living) this question. Her findings might surprise you. In this episode, she joins Amy Julia Becker to share: what siblings actually say about growing up alongside disabilitywhy the "burden" narrative is mostly a myththe one conversation every family needs to have before a crisis hits00:00 Introduction to Sibling Relationships in Disability 02:48 Research Insights on Sibling Dynamics ...
Apr 15
25 min
E21—As the mom of a daughter with Down syndrome, I have felt my fair share of complicated emotions over these past twenty years. And sometimes, I haven't known what to do with those emotions, especially the ones that seem negative, like grief or fear. I'm talking today with psychiatrist, speaker, and author Curt Thompson about all these things—how we can name our emotions in safe and trusted communities, and the way receiving comfort in the midst of those emotions can also open us up to hope ...
Apr 8
30 min
Load more