I can’t emphasize enough how great this podcast is to inform the community.

Listening to SYNGAP1 Stories is like talking to that one friend who asks you the questions you’ve been longing to answer. And who can listen to your honest answers. It can be hard to find the people who can listen to experiences they don’t have themselves. Listen to this beautiful podcast — it stands as a friend, and listening to it gives me comfort, hope, and reduces isolation.

Before listening, I had heard of SYNGAP1 briefly but never truly knew what it was or how it was diagnosed. It was an eye opener. Nicole's story about Jackson was heart warming and educational. Her love for her son is evident. Nicole - you are an amazing mom and advocate for your son!

I hold onto hope that someday, there will be a cure. A day when no child has to struggle, and every family can breathe easier. I am so incredibly proud of Nicole—her strength, her voice, and her fierce dedication to her child and to the entire Sin Gap community. She is a warrior, a light, and a source of inspiration for all of us. Her love and determination are helping pave the way for a brighter future. Keep fighting. Keep believing. One day, hope will become healing.

Thank you for having our dear friend Nicole on to speak about her beautiful son Jackson and their remarkable story. Nicole provides a wealth of knowledge through lived experience which benefits so many parents who have children with unique needs. Their family has absolutely touched our hearts and we have been forever changed learning about the experiences of families in the syngap1 community. I hope awareness will continue to be spread far and wide and relief will come to all these families in this community. Sending love and support always🫶🏻

I know it has to be very challenging for parents to open up about such vulnerable things that take place in their day-to-day lives and their children’s. I applaud these parents who share their stories in order to spread awareness for other families. Hopefully one day we can find a cure for every kid with rare genetic disorders 🤍

“Thank you so much for shedding light on SYNGAP1 and giving a voice to our community you ladies are amazing. As a grandmother of Syngpian this podcast is informative, emotional, and incredibly empowering. I hope every episode helps raise awareness and brings us one step closer to understanding and supporting those affected.” I pray every day we are closer to a cure.

Every guest has a uniquely incredible story to tell, and Ashley provides insightful questions and relevant personal experiences. These Stories are personal, touching, heartwarming, and heartbreaking. Thank you to Ashley and every guest for sharing your lives with us.

Thank you for sharing stories of families like ours. I feel less alone, and hope people listen and better understand our journeys.

Great job sharing the struggles and triumphs that we as SYNGAP1 Families face daily in our lives.

This is exactly what i was looking for, a little extra from some of the most amazing people you will ever meet. Getting to know the sorties has been a highlight of my days. Thank you Ashley for doing this.

This is an important podcast for leaders in this SYNGAP1 community to meet each other. Fabulous job, keep it up!

I enjoy, so much, listening to each one of the parents tell their story. It has really helped me realize how similar we all are and how much we can count on each other. I’m so thankful to our community and Syngap Reseach Fund!

Enjoyed listening to both Ashley and Ed during this informative Podcast. Can’t wait to volunteer at the SynGap Paddle Slap fundraiser!

This is an excellent podcast if you are the care giver of a Syngapian. With her charming personality, Ashley guides her guests into a dialog of informative and supportive content with empathy and humor.