Show Notes:
In this very candid episode, SYNGAP1 Mom Monica Harding opens up to Ashley about her 17-year-old son Jaxon. She describes his first seizures, aggression, going to church, the impact of COVID changing his schedule, and how it affected the entire family. This is an important glimpse into the struggles and joys a strong family living with SYNGAP1 faces.
Monica's SRF bio
Jaxon's Warrior Story
More links:
Follow Ashley Frye:
SYNGAP1 Stories Episode 001 - Ashley Frye
SYNGAP1 Stories Episode 005 - Panda
Panda’s News Story: Nathan’s Dog
SRF & SYNGAP1 Info:
Donate: https://Syngap.Fund/Donate
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Connect with SRF (@curesyngap1):
SYNGAP10 Weekly Video Podcast w/ Mike
SYNGAP1 Conference 2023, hosted by SRF - Hotel Reservations
SRF Newsletter Special 5th Birthday Issue 6/27/23
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: [email protected]
Music: In the Forest... by Lesfm from Pixabay
Episode 012 SYNGAP1 Stories, July 11, 2023
#SYNGAP1StoriesJaxon #Syngap #SYNGAP1 #SYNGAP1Stories #epilepsy #epilepsyawareness #autism #autismawareness #intellectualdisability #id #anxiety #raredisease #rarediseaseresearch #SynGAPResearchFund #careaboutrare #advocacy #patientadvocacy #neurology #genetictesting #therapy #family #militaryfamily
