Show Notes:

In episode 6, we turn the tables on our host. Ashley talks about volunteering for SynGAP Research Fund, organizing the SYNGAP1 Conference 2023 hosted by SRF, and the first SynGAP Paddle Slap coming up on May 6 in Oxford, MS.

SYNGAP1 Conference 2023, hosted by SRF - Hotel Reservations

SynGAP Paddle Slap - https://Syngap.Fund/Paddle23

  USA Pickleball

  The Oxford Park Commission

  The Farmstead, Oxford, MS

  Live Band - Rocket 88

  Bounce Castles donated by Blue Line Inflatables

Follow ⁠⁠⁠Ashley Frye⁠⁠⁠:

  ⁠⁠⁠Facebook⁠⁠⁠

  ⁠⁠⁠LinkedIn⁠⁠⁠

  ⁠⁠⁠Instagram⁠⁠⁠

Nathan’s Warrior Story: ⁠⁠⁠https://www.syngapresearchfund.org/syngap-warrior/nathan⁠⁠⁠

SynGAP Stories Episode 001 - Ashley Frye

SynGAP Stories Episode 005 - Panda

Panda’s News Story:  Nathan’s Dog

Cannonball For A Cure

What is SYNGAP1: ⁠⁠https://www.syngapresearchfund.org/home/what-is-syngap1⁠⁠

Syngap Research Fund: ⁠⁠https://www.syngapresearchfund.org/⁠⁠

Donate: ⁠⁠https://Syngap.Fund/Donate⁠⁠

⁠⁠SYNGAP1 & Epilepsy⁠⁠

⁠⁠Why Getting a Genetic Diagnosis Matters⁠⁠

⁠⁠How to Get Free Genetic Testing⁠⁠

⁠⁠Special Needs Trusts⁠⁠

Connect with SRF (@curesyngap1):

  ⁠⁠Facebook⁠⁠

  ⁠⁠Twitter⁠⁠

  ⁠⁠Instagram⁠⁠

  ⁠⁠LinkedIn⁠⁠

  ⁠⁠TikTok⁠⁠

  ⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠ w/ Mike

Wednesday SRF Family Zoom Meeting:

⁠⁠Syngap.Fund/SRFfam⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417

Comments: [email protected]

Music: ⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠

Episode 006 SynGAP Stories, April 18, 2023

#SyngapStoriesPaddleSlap #SRFConference #Pickleball #Volunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology