On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares how time and perspective have shaped the way she processes that experience.Rohini shares not only about her own diagnosis and treatment, but also about her father’s cancer diagnosis, which came shortly after hers. She discusses how her understanding of what they both endured has evolved over the years and the lasting impact those experiences have had on her life.In recognition of National Cancer Survivor Month this June, we’re honored to share Rohini’s story with our community. Ten years after completing active treatment, she offers a real look at what survivorship means, the challenges and growth that come with it, and how she continues to navigate life beyond treatment.Rohini’s optimism is magnetic, and her honest reflections are sure to resonate with many in the sarcoma community. Thank you so much, Rohini, for joining us and for sharing your story so openly. Let’s dive in.Resources:Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Rohini:Rohini's Ted Talk: https://www.youtube.com/watch?v=-nvcWaMXM2sInstagram: https://www.instagram.com/rohinideivTikTok: https://www.tiktok.com/@rotalksLinkedIn: https://www.linkedin.com/in/rohini-deivasigamani-758712207/

This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of symptoms, all while navigating her senior year of college. Since her diagnosis, she has navigated treatment as she’s entered young adulthood, and shares with us what it’s been like coping with the uncertainty of sarcoma alongside this major life transition. A lifelong writer, Sarah recently began the project Echoes of Us RI to highlight stories of fellow patients, medical professionals, and caretakers, contributing to narrative medicine as a form of advocacy. Sarah explains how this has played a role in her journey, and also given her both an outlet and a purpose. When she isn’t writing or at treatment, Sarah travels as much as she can (and gives some tips on how she makes this work between treatments!), and talks about how she chooses to live despite her prognosis. This episode will both educate and inspire - true to Sarah as a writer and a human.Resources:Subtype Page: curesarcoma.org/sarcoma-subtypes/angiosarcoma/Discussion Guide: curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: www.facebook.com/groups/512452631597704Connect with Sarah:Sarah’s Instagram: : www.instagram.com/sarah.downey20/Echoes of US RI Instagram: www.instagram.com/echoesofusri/Echoes of Us RI: www.echoesofusri.com/

On this episode, we speak with Gianna Cericola, a survivor of Desmoplastic Small Round Cell Tumor (DSRCT for short). After two long years, she rang the bell signifying the end of active treatment just two weeks before we recorded this episode. We feel so lucky to be able to sit down with her at this pivotal moment of transition. Gianna opens up about what being done with treatment actually means, and why the end of treatment isn’t the end of a cancer diagnosis.She shares about how she’s relied on self-advocacy, not only to receive a diagnosis but to navigate treatment and conversations with her medical team.As an adolescent young adult, Gianna talks about continuing to live her life through her diagnosis - including getting engaged during treatment and thinking about surrogacy to one day build her family - and why it can be difficult to plan for the future.This episode is full of raw and honest insight into Gianna’s experience, and we are so grateful for the time she took to share with us.We also wanted to note and give insight to a conversation we have about Gianna’s subtype being classified as ultra-rare. Sarcoma is a rare cancer to begin with, but within the numerous subtypes of sarcoma, there are some, like DSRCT, that are considered “ultra-rare” - defined as subtypes with an annual incidence of 1 or fewer cases per million people. Thank you Gianna for giving voice to the experience of being diagnosed with an ultra-rare subtype.Subtype Page: https://curesarcoma.org/sarcoma-subtypes/desmoplastic-small-round-cell-tumor/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Gianna:Gianna’s DSRCT Group: https://ig.me/j/Abb-dS58-Ff-DnKH/Instagram: @gianna.cericolahttps://www.instagram.com/gianna.cericola/TikTok: https://www.tiktok.com/@gianna.cericola

On today’s episode we’re sharing the sarcoma story of one of our Sarcoma Stories hosts, Tasha. Tasha has been hosting Sarcoma Stories since its inception in November 2024 and she’s now sharing her story about her Embryonal Rhabdomyosarcoma diagnosis.We also talk about some of the transitions happening at SFA with Tasha’s role as she embarks on a new endeavor, starting her program - Move Anyway - while welcoming Katie Wintergerst to the podcast as co-host.Let’s dive in!Subtype Page: https://curesarcoma.org/sarcoma-subtypes/embryonal-rhabdomyosarcoma/Connect with Tasha:IG @tashanathan_ @moveanyway_Email: [email protected]

On this episode, we speak with SFA Director of Europe’s Strategy and Engagement, Pan Pantziarka. While he is an incredible staff member at SFA who supports SFA’s global work, he also has a sarcoma story of his own as a care partner to his son, George.After George was diagnosed with three different primary cancers and passed in 2011, Pan quit his job in the corporate sector and found work in oncology. He is committed to making a difference using everything he can - scientific training, advocacy, and demand for change.He speaks to us today about rare cancer predispositions, such as Li Fraumeni Syndrome, the story of George and his mother, why knowledge is power, and where he finds hope.We are so lucky to not only have this conversation with Pan, but to have him on the team at SFA, striving for answers for sarcoma patients and their families.Thank you Pan, for all you do for the sarcoma community.Subtype Page: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what it’s been like navigating young adulthood with sarcoma, and shares the mindset and philosophy that have shaped how she lives her life since her diagnosis.We’re also joined by Kate’s sister, Kristen, who offers her personal perspective on being on the sarcoma journey with a sibling. She reflects on her role in Kate’s care and how she helps bring a sense of normalcy to everyday life.It’s immediately clear that Kate and Kristen are a dynamic duo. They balance one another, communicate with the unspoken understanding that only siblings share, and together tell a powerful, honest story of how sarcoma is truly a family disease. Thank you, Kate and Kristen, for joining us and sharing your journey. Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Kate:Kate IG: @blueforkate https://www.instagram.com/blueforkate/

On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin—lovingly referred to as “Dad” throughout this episode—was diagnosed with sarcoma.Hardin’s journey with sarcoma was unique. His sarcoma diagnosis came shortly after he had already been diagnosed with breast cancer, leading Simone and her family into a complex and uncertain path toward understanding the disease and deciding how best to move forward with treatment.Simone shares what it was like to support her father as a caregiver alongside her mother, offering a deeply personal perspective on navigating a rare cancer diagnosis.Shortly after her father’s diagnosis, Simone’s experience took another unexpected turn when she herself was diagnosed with Hodgkin’s lymphoma.Simone reflects on the stark differences she observed between her own treatment options and those available to her father, and she speaks passionately about why advocacy and research in the sarcoma space are so critical.Simone, thank you for being such a powerful and committed voice in the sarcoma and cancer community, and for sharing Dad’s story with us.Let’s dive in.Sarcoma Patient Pathways SurveyDiscussion GuideSarcoma Stories FB GroupConnect with Simone:Instagram: @_simonemichelle_Email: [email protected]: https://www.linkedin.com/in/simone-cheatham/

In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approached the end of life. Julie offers a unique and powerful perspective on caring for an adult child through terminal illness.Julie reflects on Don’s path to diagnosis, including misdiagnosis and the feeling of being lost within the medical system. Julie emphasizes the importance of self-advocacy and the need for better systems to help patients navigate the healthcare system and achieve timely care. She also shares how she continues to honor Don’s legacy through her advocacy work, fighting for better awareness, research, and outcomes for sarcoma patients.With courage and compassion, Julie not only tells Don’s story and her family’s experience with sarcoma but also reminds us of the importance of being an audible voice for inaudible voices, as we continue to push for better treatments and hope for all affected by sarcoma.LinksSubtype Page: https://curesarcoma.org/sarcoma-subtypes/undifferentiated-pleomorphic-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Julie: IG @juliejharpEmail: [email protected]

We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care.That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries.She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy.Now, Crystal pays it forward by sharing her own tips, tricks, and encouragement, reminding others that life as a double ostomate can absolutely be full, joyful, and meaningful.This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community.Thank you, Crystal, for your vulnerability, honesty, and commitment to helping others through your story.LinksSubtype Page: https://curesarcoma.org/sarcoma-subtypes/malignant-peripheral-nerve-sheath-tumour/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Crystal: @double.ostomy.gal

In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’s operations, but she is also a synovial sarcoma survivor and passionate patient advocate.As our first international guest, Carol offers a deeply personal look at her diagnosis and treatment journey in Ireland. She reflects on the road to getting her diagnosis and then the practicalities of navigating care, stepping away from her career as a florist after discovering the sarcoma was in her hand, and what it meant to raise two young children while facing cancer—all while maintaining the unmistakable humor you’ll hear throughout our conversation.Carol also shares the origin story of Sarcoma Cancer Ireland and illustrates what powerful, grassroots advocacy looks like. From helping bring a sarcoma specialist to Ireland to collaboration across the global sarcoma community, she shows how collective voices can drive meaningful change.This episode is rich with storytelling, insight, vulnerability, and—yes—plenty of laughter. It’s an inspiring and uplifting conversation you won’t want to miss. Let’s dive in! Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Sarcoma Cancer Ireland: https://sarcoma.ie/ https://www.facebook.com/sarcomacancerirelandhttps://www.instagram.com/sarcomacancerireland/https://www.linkedin.com/company/sarcoma-ireland/