Discussion of a great tool to develop and utilize in our Long Covid recovery — setting better boundaries to better protect our energy, needs and well-being. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

KathleenSue’s voicemail, Karolina’s email and Sara’s text messages all telling their story, their experiences of having Long Covid. Please send me your story so I can publish your story, too! Voicemail, email or text message! It is so powerful to hear one another’s stories. Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, can use voice messaging available through Spotify)

Not every day is a bad day — sometimes there are good days, too! Also, sometimes music really helps! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Update on attempts to find a cheaper set-up for living/lower monthly bills while preparing to take a significant income cut due to disability retirement. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Update after 4 calls to insurance company over 2 days for a total of about 2.5 hours of my life I will never get back, that has turned my brain to mush. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Perhaps the ugliest part of Long Covid — the lack of support and awareness in our time of greatest need. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Disclaimer: these are the medications I am taking, recommended by my medical providers. Please do not take this as medical advice. Anything that piques your interest, please talk to your medical provider first before trying any new medications/supplements. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Discussed worldwide studies you can look up on clinicalstudies.gov and reach out to the investigators if there is a study going on near you. You can also try reaching out here for the RECOVER-VITAL study: https://recovercovid.org/contact-us. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Hit with another crash after trying to spend just a little time on a project after getting through a several day long flare-up. Lesson learned: if you push against LC, it will push back way harder! As backwards as it may sound, relaxing is the way to fight LC. I am not used to truly relaxing. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

I use scripts from my uncle’s book to make a Long Covid-focused healing meditation. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)