Stronger Every Day | Podcast on Podbay

Stronger Every Day

Bo Bigelow

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

This week, Tess participates in a meeting about her future and shares her thoughts at a critical juncture.

May 27

7 min

SED 592: Dad Camp

This week, summer lasts about three months and Tess has summer school for 18 days of it.

May 20

11 min

SED 591: What Happens When the Pastry Department Never Opens

This week, there's a bakery inside your body, and Tess's bakery has a staffing problem.

May 13

16 min

SED 590: A Hitch in Her Step

This week, a mysterious hitch in Tess's step has us thinking of a rough time from long ago.

May 6

5 min

SED 589: IEP Meeting - All About the Coffee part 2

This week, the long-awaited part two about Tess's IEP for this year.

Apr 29

8 min

SED 588: Beach Plus Pica

This week, Tess goes somewhere she hasn't been in many years, a place we've avoided for a very good reason.

Apr 22

6 min

SED 587: You Answered - A Project Centauri Update

This week, I called, you answered. An update on Project Centauri, our effort to get 100 new families on Matrix.

Apr 15

9 min

SED 586: A Critical Mistake

This week, a critical mistake lands Tess back in the emergency room.

Apr 8

6 min

SED 585: How We're Using AI to Help Cure our Rare Disease

This week, I want to tell you about how I'm using AI to help with our foundation's work in our quest for a cure or treatment for Hao-Fountain syndrome.

Apr 1

9 min

SED 584: Tuning In

This week, we're delighted as Tess expands her video library into uncharted territory.

Mar 25

5 min