PeDRA Pearls
PeDRA Pearls
Pediatric Dermatology Research Alliance
The Pediatric Dermatology Research Alliance (PeDRA) is vibrant research network pursuing the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.
Translational Dermatology: Bringing Science Closer to Patients
In this episode, Jason Hawkes, MD, returns to discuss the evolving role of translational dermatology in bringing scientific discoveries closer to patient care. He shares how advances in immunology and clinical trials are transforming treatment for psoriasis, atopic dermatitis, hidradenitis suppurativa, urticaria, vitiligo, alopecia areata, and other inflammatory skin diseases. The conversation also explores personalized treatment, whole-person health, access to care through clinical research, and the growing opportunities for pediatric dermatologists to participate in research outside traditional academic settings.This episode is presented by Disc Medicine. Although Disc Medicine provided funding for this PeDRA Pearls Podcast, the contents of the podcast were developed independently by PeDRA. Learn more about Disc Medicine
Jul 6
49 min
Rare Disease, Real Progress: Unraveling Bachmann-Bupp Syndrome
In this episode of PeDRA Pearls, we explore the discovery of Bachmann-Bupp syndrome and the remarkable collaboration that transformed a single patient observation into a growing body of research and a promising treatment pathway. Host Jenn Dawson speaks with Caleb Bupp, MD, Andre Bachmann, PhD, and Liz VanSickle, PhD, about the genetics, skin and hair findings, and translational science behind this ultra-rare disorder, as well as the critical role pediatric dermatologists can play in recognizing patients, advancing research, and building connections for families navigating rare disease.
Jun 29
52 min
Connection, Service, and Redirection with Mitchell Hanson, MD, MPH
In this episode of PeDRA Pearls, host Jenn Dawson welcomes Mitchell Hanson, MD, MPH, PeDRA’s new Education Fellow, for a conversation about connection, service, and intentionality in pediatric dermatology. Mitchell shares how his path through neuroscience, public health, medical education, and community-centered initiatives led him to PeDRA, and reflects on the importance of keeping patients at the center of research and education. Listeners will hear about his passion for making pediatric dermatology more accessible, the lessons he learned through global health work and SunSafe Augusta, and how setbacks can become meaningful redirections toward purpose.
Jun 22
29 min
The Evolving Research Landscape in Epidermolysis Bullosa
In the first installment of PeDRA’s 2026 educational series – Research in Action: Advancing Care for Epidermolysis Bullosa (EB), Dr. Peter Marinkovich of Stanford University provides a timely overview of emerging therapies and clinical research in EB, including gene therapies, cell-based approaches, inflammation-targeted treatments, and strategies to improve wound care and long-term outcomes. Dr. Marinkovich includes an excerpt from Aaron Owens, a dystrophic EB patient who participated in a clinical trial. Designed for clinicians, researchers, patients, caregivers, and others involved in EB care, this program highlights recent progress in the field and the collaborative work driving better treatment options for patients.Click here to view the video version of this webinar.Special thanks to BioMendics, Castle Creek Biosciences, Chiesi, and Krystal Biotech for their support of the 2026 EB Educational Series. PeDRA is solely responsible for all program content and the selection of all presenters, authors, moderators, and faculty.
Jun 15
54 min
Beyond Alopecia: Advancing Pediatric Hair Disorders Research
Tune in to hear Dr. Cathryn Sibbald and Dr. Ilka Netravali, leaders of PeDRA’s Hair Disorders Focused Study Group, explore how pediatric hair disorders research is evolving beyond alopecia areata. They discuss multicenter studies, emerging biomarkers and precision medicine approaches, cross-specialty collaboration, and the importance of incorporating patient and family perspectives to improve care. The conversation highlights how this growing body of research is helping move the field toward more personalized, evidence-based, and equitable treatment for children with hair disorders.
Jun 8
37 min
Pediatric Atopic Dermatitis: New Guidelines, New Treatments, New Questions
In this episode, host Jenn Dawson talks with Dr. Dawn Davis, Dr. Amy Paller, and Dr. Larry Eichenfield about the newly published pediatric atopic dermatitis guidelines and what they mean for clinicians, patients, and families. Together, they unpack the evidence behind prevention, comorbidities, and treatment recommendations, discuss how rapidly the therapeutic landscape is evolving, and highlight the biggest unanswered questions that remain in research. The conversation also explores the importance of patient advocacy, shared decision-making, and improving access to care as the field moves toward more personalized treatment.Guidelines of care for primary prevention of atopic dermatitis and awareness of comorbid conditions in pediatric atopic dermatitis.Guidelines of care for the management of atopic dermatitis in pediatric patients.Please click here for a list of speakers' conflicts of interest.
Jun 1
51 min
PeDRA at SID - Key Takeaways from the 2026 Meeting
In this episode of PeDRA Pearls, Jenn Dawson is joined by PeDRA Executive Director Mike Siegel and Outcomes Committee Chair Dr. Marcia Hogeling to recap key themes from the Society for Investigative Dermatology (SID) meeting. They discuss emerging trends in dermatology research, including the growing role of genetics, molecular diagnostics, multi-omics, and biologic therapies, as well as highlights from PeDRA’s featured session on vascular anomalies, rare skin diseases, and RIME. The conversation also explores the importance of patient advocacy, collaboration between clinicians and basic scientists, and the exciting future of pediatric dermatology research.Announcements:Register for the Epidermolysis Bullosa webinar with Dr. Peter MarinkovichRegister for the 14th PeDRA Annual Conference
May 21
35 min
PeDRA at SID - A Patient Advocacy Perspective
Meredith Weiss joins the podcast to discuss a study that was presented in the inaugural Gorlin Syndrome Alliance Round Table session at the Society for Investigative Dermatology (SID) meeting. Meredith is the Executive Director for the Gorlin Syndrome Alliance.Novel PTCH1 Variants in Gorlin Syndrome Identified through Genomic Analysis of 118 Patients. The authors of this study are:Ryan Kern*1, Amy Xiong1, Qianqian Wang2, Philip Beachy2, Jean Tang11Department of Dermatology, Stanford University School of Medicine, Stanford, California, United States; 2Department of Developmental Biology, Stanford University School of Medicine, Stanford, California, United StatesPlease click here for more information about the Gorlin Syndrome Alliance.
May 20
11 min
PeDRA at SID - Reflections with Lynn Petukhova, PhD
Lynn Petukhova, PhD, is an Assistant Professor in the Ronald O. Perelman Department of Dermatology and the Department of Population Health.
May 20
15 min
PeDRA at SID - Reflections with Stefanos Koutsoukos, and Ganna Bilousova, PhD
Ganna Bilousova, PhD, is an Associate Professor of Dermatology at the University of Colorado and mentor to Stefanos Koutsoukos, a PhD candidate at the University of Colorado. Dr. Bilousova and Stefanos received a 2025 PeDRA Research Fellowship Award for their project, Characterizing Deficits in Early-Stage Autophagy and Lipid Accumulation in iPSC-Derived Fibroblasts and Keratinocytes from Individuals with Recessive Dystrophic Epidermolysis Bullosa. In this episode, they discuss findings from the study as presented at the Society for Investigative Dermatology (SID) Annual Meeting.
May 20
15 min
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