
Peter lives with multiple chronic conditions but has spent the past two years tirelessly advocating for patients everywhere by taking the morning train from his home in New York City to Washington D.C. Aaron talks to Peter about what advocacy has accomplished, where advocacy will go next, and the things we can look forward to in 2019.
Feb 27, 2019
1 hr 7 min

Aaron interviews Dr. Alex Solyom, senior medical director at Enzyvant, about his team's work in developing a new therapy for an ultra-rare genetic condition known as Farber disease.
Feb 20, 2019
17 min

A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.
Dec 24, 2018
49 min

Lilly chats with the ladies of the MS Minority Research Engagement Partnership Network (which is a bit of a mouthful!) Holly, Anita, and Shawn about their work in increasing inclusivity and access in scientific research.
Dec 5, 2018
31 min

Maria Thomas joins Lilly in honor of Hyperhidrosis Awareness Month to talk about her “life as a puddle” and inspiring advocacy work.
Nov 28, 2018
24 min

To discuss the healthcare issues that are at stake in the upcoming midterm elections, we speak to lawyer, healthcare advocate, and professional patient, Matt Cortland. As a person living with chronic illnesses, Matt knows all too well the necessity of equitable and robust access to care in everyone's lives; as a lawyer with a Master's in Public Health, he knows the issues and the policies inside and out. Here's our conversation about American healthcare and the things that are at stake in November.
Oct 31, 2018
56 min

To kick off the new season, Lilly sits with Chris Snider, a diabetes advocate, blogger, podcaster, and the community manager at Tidepool.org, an open-source and not-for-profit company working to make diabetes data more accessible. Chris chats about his work, maturation as an advocate, and fighting for access to better and more inclusive care.
Oct 10, 2018
28 min

Peter Morley (@morethanmySLE on Twitter) is using his story to help fight for healthcare. Although he was once a very private person who never even told his friends he had cancer, Peter found his voice after the 2016 Presidential election, when he felt called to fight to protect the gains of the Affordable Care Act. In this wide-ranging conversion, we discuss the power of a story, taking 3:25AM trains from NYC to DC, and how his first-ever trip to DC resulted in making a John McCain staffer cry.
Aug 1, 2018
1 hr 14 min

Ashley Boynes-Shuck is a writer, patient advocate, and a powerhouse voice for those who live with chronic conditions. Among other things, she's a published author who just finished her fourth book, an animal lover and advocate, a lover of fashion who won a fashion award from the Pittsburgh Fashion Hall of Fame, an avid birdwatcher...and somehow she found time to chat with Lilly about her journey, her ongoing projects, and her life as one-half of a power couple.
Jul 25, 2018
25 min

"My heart is in the wrong place in my chest."
Molly Sarah chats with Lilly about her long road to diagnosis, her stint as a roller derby athlete, and why her rheumatologist shouted, "Oh my god, I got one!" when he first met her.
Jul 18, 2018
31 min
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