My Lupus Living Room
My Lupus Living Room
Lupus Foundation of America Greater Ohio Chapter
The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.
Riding Through The Lupus Storm
Courtney joins the podcast to talk about her journey with lupus and share the details of an upcoming Motorcycle Ride she is helping to organize to raise money and awareness. She is joined by Michael from Punishers LEMC which is the club hosting the event! Michael shares a little bit of the history of Punishers LEMC as well as why its important to give back to the community.
May 1
27 min
Biologic Treatments For Lupus Patients
Dr Vicki Nahra from University Hospitals in Cleveland joins Suzanne to discuss biologic therapies available for lupus patients! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]⁠Upcoming Events: https://linktr.ee/lupusgreateroh🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy.Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now.
Apr 1
32 min
Lupus Mail Lady Uses Influence To Deliver Awareness and Hope!
Rachelle Roy shares her journey overcoming discoid lupus, taking pride in her work and serving her community. She is well traveled, hopelessly optimistic, and a beacon of light in the community she serves!🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy. Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now.💜 Get Involved:🌐 Website: https://www.lupusgreaterohio.org💰 Donate: https://www.lupusgreaterohio.org/donate🚶‍♀️ Join a Walk: https://www.lupusgreaterohio.org/walk🛍️ Shop RaiseRight: https://www.lupusgreaterohio.org/raiseright🙌 Volunteer: https://www.lupusgreaterohio.org/get-involvedFollow Us:Facebook: https://facebook.com/LupusgreaterOHInstagram: https://instagram.com/lupusgreaterOHTwitter/X: https://twitter.com/lupusgreaterohTikTok: https://tiktok.com/@lupusgreateroh
Mar 11
24 min
Chef Finds Her Recipe For Thriving With Lupus
Latasha has been living with lupus for the last 25 years. As a Chef by trade often working 10-12 hours per day, she has her good days and bad. Latasha shares how her unbreakable spirit and can do mindset has allowed her weather every storm and persevere!Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected] For "What's Up Doc?" A Virtual Lupus Q&A Panel - Visit Our Website
Sep 26, 2025
49 min
Seeking Community After Lupus Diagnosis
Jen Oster started getting a strange rash on her legs while recovering from COVID. After multiple doctors appointments, prescribed rounds of medication and testing she was diagnosed with lupus. Jen sits down with Suzanne to share what she went through along the way and ultimately how it changed her life forever. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected] With Jen In Cleveland on September 6thVisit Our Website
Aug 30, 2025
43 min
Tackling Lupus In Recovery
Valerie is a newly diagnosed lupus patient just beginning her journey. She shares her struggle to accept and understand her diagnosis while also in recovery from alcohol. Her story is a testament to strength, resilience, and perseverance. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
Aug 28, 2025
43 min
A Family Overcoming Lupus Together!
Melissa shares her incredible journey with lupus and how she, and her family, have managed to find strength together to overcome many hurdles along the way! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
Aug 13, 2025
34 min
Brittney refuses to let lupus win!
Brittney embodies the definition of a lupus warrior. 556 Days. 6 different hospitals. Countless surgeries. A lot of people may have given up. She was determined to come home. Listen to her incredible story! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
Jun 13, 2025
33 min
Lupus Patients & Caregivers Share Stories
The Greater Ohio Chapter held the "I Got It Right" Minority Retreat Saturday April 12. Patients and caregivers from across the region celebrated Minority Health Month by learning about Reiki, Meditation, Hair Care, Yoga, and Much More!After the program concluded Sarah, Laura, and Larissa sat down with Alex to share their thoughts on the program, their journey with lupus and the community as a whole. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
May 12, 2025
21 min
Finding Beauty in Having Lupus
Kim opens up to Suzanne about her journey with lupus including finding purpose, and how she uses beauty pageants as a platform for change!Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
Apr 25, 2025
40 min
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