This week I talked to Ashley Stump, a pelvic floor physical therapist who knows all about Lichen Sclerosus. We talked about what pelvic floor physical therapy is, why women with LS need it, what to expect on your first visit, and lubes. She gave us tips on what to look for when you're looking for a new pelvic floor physical therapist, and some resources are where to find one. For complete show notes and all the links mentioned in this episode visit lssupport.net/pfpt.

Heeeyyy! Longtime no see. Life's been hectic and there's exciting news. You'll be getting new episodes starting Nov 5! We've incorporated LSSN and we're an official nonprofit! Listen to find out more. Second, my husband and I ended up in the hospital with covid. Lorenzo still hasn't made it home. We could really use your help. I'm excited to be with you again. Feel free to email me at [email protected].

Heeeyyy! Longtime no see. Life's been hectic and there's exciting news. You'll be getting new episodes starting Nov 5! We've incorporated LSSN and we're an official nonprofit! Listen to find out more. Second, my husband and I ended up in the hospital with covid. Lorenzo still hasn't made it home. We could really use your help. I'm excited to be with you again. Feel free to email me at [email protected].

Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing. https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/ We have some equally exciting news. We are turning Lichen Sclerosus Support Network into an official nonprofit! Our mission will be to prevent the negative emotional and mental health effects that can come with an LS diagnosis. That's right we are going to spread the message even further and help more people. So if you can help, please do your part because it's going to take the whole community. Check out our new webpage and read all about the exciting things we have coming. https://lichensclerosuspodcast.com/nonprofit Donate: https://fundly.com/lichen-sclerosus-support-network# I can't wait to hear your reaction. Let me know what you think and how you can help the community. Email me at [email protected] or DM me on IG @lichensclerosuspodcast.

Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series of questions relating to these concepts and Lichen Sclerosus. I would love to hear your thoughts on acceptance and resilience. Email me at [email protected] or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors. Reach out to Jaclyn by email at [email protected] or DM her on IG @thelostlabiachronicles. Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus. If you want to reach out to Jen, you can message her on Twitter and/or Instagram @jenpatala. Email me at [email protected] or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors. Reach out to Jaclyn by email at [email protected] or DM her on IG @thelostlabiachronicles. Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

Today we are joined by Erica Ebrel, a registered dietician and fellow Lichen Sclerosus warrior. Erica is here to talk to us about the relationship between the food we eat and Lichen Sclerosus. She is going to tell us all about what the research says, what we should do if we are interested to know if diet impacts our Lichen Sclerosus, and weighs in on some popular Lichen Sclerosus diets (e.g., low-oxalate). I am so grateful for this amazing conversation with Erica. If you want to reach out and talk to her, you can find her on Instagram @ericasappletite or email her at [email protected]. Let me know if diet affects your LS or if you're trying to figure that out. Email me at [email protected] or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

This week we're talking to Heather Cooan once again. If you did not get a chance to check out Heather's diagnosis story, which were the previous two episodes, go back and listen because she shared her amazing story of how she found out she had vulva cancer and how it changed her life. Post healing she was looking for how she could get into the natural healing space to pay it forward and help other women. This led her to her new field and love of nutrition, where she ultimately become a nutrition therapy practitioner and a  functional diagnostic nutrition practitioner. Today we’re going to find out exactly what they do and how she could help us heal our Lichen Sclerosus. If you’re interested in leaky gut or how hormones or food sensitivities trigger our LS this is the episode for you. Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast. While you're there be sure to schedule a free consultation with Heather and follow her on her social media platforms. Email me at [email protected] or DM me on IG @lichenslcerosuspodcast and let me know your experiences with nutrition. Or better yet join our next LS Support Virtual Meetup every other Saturday from 2-4 and 7-9 PM EST. at https://lssupport.net/connect and tell me in person. Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system. In today’s episode, we learn how Heather advocated for herself and fought for her values. Today her Lichen Sclerosus is in remission and she is now cancer-free! Her story reminds us of the importance of self-advocacy in the medical realm. Be sure to subscribe so you don't miss the next episode where Heather details how a Nutrition Therapist can help us get healthy. I want to hear from you. What has advocating for yourself done in your life? Email me at kathy@lichensclerosuspodcast or DM me on Instagram @lichensclerosuspodcast. I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring awareness, information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Resources: If you are in the Phoenix area, check out Dr. Joseph Brook’s here: https://www.arizonaspecializedgynecology.com/provider/joseph-brooks-md Dr. Bhoola: https://arizonaoncology.com/covid19/ If you are battling vulvar cancer, check out the vulvar cancer awareness forum here: https://www.facebook.com/vulvarcancerawarenessforum/ For nutritional consultations, see Heather’s website: https://heathercooan.com/ If you haven't joined the email list for The Lost Labia Chronicles, a blog about beating Lichen Sclerosus, you want to do that today. https://lichensclerosuspodcast.com/lost-labia-chronicles-landing-page/ Be sure to follow her on IG and FB @thelostlabiachronicles.  

Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible. Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began to manifest, how they impacted her life, and how she was repeatedly let down by the system.