New symptoms. Invisibility. Isolation. Being diagnosed as Rare. Advocacy. Building connections.
Ashley Gregory and Price Wooldridge walk us through their journeys living with LEMS. Ashley was starting a career, whereas Price held years of broad experience when their diagnostic odysseys began. They share the similar challenges they faced and how they have helped each other through them, despite their difference in age and stages in life. Join us as we discuss the importance of finding a name for their symptoms and how having a community to reach out to has made all the difference in creating their new normal.
LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey—searching for the right doctor, the right diagnosis, or the right treatment—this site can guide you to that next milestone.
Feb 23, 2022
35 min
Welcome to the LEMS Aware Podcast. We’ve been waiting for
you.
My name is Kevin Freiert, and I will be your host.
Lambert-Eaton myasthenic syndrome, also known as LEMS, is a
rare neuromuscular disease that can have a profound effect on a person's
mobility and quality of life.
LEMS disrupts the communication between nerves and
muscles. LEMS typically causes severe debilitating
and progressive weakness in the upper legs and hips, making it difficult for a
person to walk or even stand.
LEMS can also weaken the muscles of the upper arms and
shoulders, making self-care and independence difficult. Some people with LEMS also experience other
symptoms, such as dry mouth or problems with vision.
LEMS Aware was created to deliver relevant information,
resources, and connections to patients and caregivers who may be living with or
affected by LEMS.
The LEMS Aware Podcast lets you hear from people in the LEMS
community on topics that matter to you.
Feb 2, 2022
54 sec