The Joel Nelson Podcast
The Joel Nelson Podcast
Joel Nelson
Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality. Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.
People-Centered Healthcare: Treating the Person, as well as the Disease
We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in people-centered healthcare. Person-centered healthcare (PCHC) is a holistic approach to healthcare that puts the patient's needs and preferences at the centre of care.  In PCHC, the patient is seen as an active partner in their own healthcare, involved in all aspects of their care, from setting goals to making decisions about their treatment. This approach has been shown to provide improved patient outcomes and quality of life. We will explore the relevance of PCHC, especially in the context of mental health and dermatological conditions, discuss the benefits, how to implement it in practice, and current projects related to PCHC in dermatology. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Feb 9, 2024
38 min
Autoimmune Disease in Families | Did Stress Cause My Autoimmune Condition? | Part 3
In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition.  She discusses her journey to diagnosis, her decision to undergo total colectomy surgery, and how she is managing her Ulcerative Colitis today - including by using peer support communities and gaming as escapism. Lauren also shares her insights on the connection between stress and autoimmune disease and offers advice to others struggling with similar challenges.  Discussion Topics: What is Ulcerative Colitis?Lauren's journey to diagnosisThe decision to undergo total colectomy surgeryManaging Ulcerative Colitis on a daily basisThe connection between stress and autoimmune diseaseAdvice for others living with autoimmune diseaseUsing peer support communities as part of the management of long-term health conditionsIf you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3Follow our GUEST: Instagram: @theless.eye.know Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here.All Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Jan 31, 2024
39 min
Autoimmune Disease in Families | Crohn's Disease And Being Athletic: Can You Do Both? | Part 2
In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease.  Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation. Joel and Matthew talk about a variety of topics related to Crohn’s disease, including: - The challenges of living with Crohn’s disease, such as managing symptoms and finding the right treatment- The importance of staying active and athletic, even with a chronic illness- How to raise awareness about Crohn’s disease and other chronic illnesses- The interview is interspersed with Joel’s reflections on living with chronic pain and questions from viewers. Overall, the talk show is an upbeat and informative discussion about living with Crohn’s disease. Matthew is an inspiring example of someone who has been able to overcome the challenges of his illness and live a full and active life with suitable adaptions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow our GUEST: YouTube: youtube.com/@VolumeMayVary Follow the HOST:Instagram: https://instagram.com/joelvsarthritisFacebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Jan 22, 2024
47 min
Autoimmune Disease in Families | Living with Relapsing-remitting Multiple Sclerosis | Part 1
In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis.  We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer support and how sharing stories can help others. Here are some of the specific topics that are covered in the show: - Kevin's diagnosis with MS and how he came to terms with it- The different symptoms of MS that Kevin experiences- How Kevin manages his MS on a daily basis- The importance of staying positive and hopeful when living with a chronic illness- The importance of peer support and how being a part of a community that understands helps The show is an excellent resource for anyone interested in learning more about MS or chronic pain in general. It is also a source of hope and inspiration for people who are living with chronic conditions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow the HOST:Instagram: https://instagram.com/joelvsarthritisFacebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Jan 14, 2024
50 min
Navigating Chronic Pain Without a Specific Cause
Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs. In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she manages her pain. Petra's story is a reminder that chronic pain is a real and debilitating condition, even without a formal diagnosis. It is also a reminder that there is hope for those who are living with chronic pain.If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3Follow our GUEST:  Twitch: https://twitch.tv/petraphoenixFediverse: @petraphoenix @mendeddrum.org Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Jan 5, 2024
1 hr 10 min
Battling for Recovery from Transverse Myelitis with Chiara Lionel Salim
Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms. Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our YouTube Channel; Chiara last joined us on World Psoriasis Day to talk about the fantastic work she does as a psoriasis patient advocate and founder of Psoriasis Indonesia. In this episode, however, we will discuss her terrifying experience of TM, the importance of her family as a support network and how she recently overcame paralysis from a flare.  A brilliant speaker and wonderful human being, this one is not to be missed. Have your tissues at the ready! Follow our GUEST: Instagram: @chichilionel & @transversemyelitis.id Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter: https://twitter.com/joelvsarthritisJoin our Online Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Dec 19, 2023
1 hr 1 min
Our Third Birthday and a New Look!
Our podcast turns three years old, and with it comes a makeover! In this short update, Joel explains the reason for the change and the exciting things to come. Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter: https://twitter.com/joelvsarthritisLinks: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Dec 18, 2023
2 min
The Mental Health Impact of Living with a Chronic Skin Condition with Dr Eleanor Chatburn
Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition. We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face. Plus, we get valuable insight into the psychology of living with a skin condition straight from the expert! Follow our GUEST: Instagram: https://instagram.com/dreleanorchatburn Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter: https://twitter.com/joelvsarthritisLinks: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Nov 16, 2023
52 min
Living More Comfortably with Eczema and Psoriasis
Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives. We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and experiences. We also cover topics such as: How to identify and avoid triggersAlternative treatments and medicationsHow to manage stress and anxietyThe emotional and social impact of eczema and psoriasisTips for living a full and active life Our guests include: Nadav Shraibom, MSc in Traditional Chinese Medicine (TCM), and Scientific founder of Medovie, a skincare company that combines the wisdom of traditional Chinese medicine with advanced scientific research to develop safe, natural, and efficacious skincare and dermatological products. Jo Greenslade, Managing Director of Eczema Clothing, a company that provides super soft, sustainable clothing and sound advice to people with itchy skin and who has personal experience with eczema in her family. The talk show is hosted by Joel Nelson, a father of one and Psoriasis Patient Leader, who has lived with psoriasis since childhood. He shares his story of how he has learned to manage his condition. Follow our GUESTS:  Medoviehttps://www.facebook.com/MedovieOfficial/https://www.instagram.com/medovieofficial/https://www.linkedin.com/company/medovie/https://twitter.com/medovieofficial/https://www.instagram.com/medovienadav/ Eczema Clothinghttps://www.facebook.com/EczemaClothing/https://www.linkedin.com/company/eczema-clothing/https://www.instagram.com/eczema_clothing/ Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter: https://twitter.com/joelvsarthritisLinks: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Oct 17, 2023
59 min
Pain and Me with Mik Scarlet
On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space. Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches upon his incredible and varied career. Please be aware that this episode contains some language and themes (including suicide and painkiller addiction) that may be unsuitable for younger audiences. If any of the topics discussed in this episode have impacted you, please visit: https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines for signposting to support. Follow our GUEST: Instagram: https://www.instagram.com/mikscarlet Twitter: https://twitter.com/MikScarlet  Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter: https://twitter.com/joelvsarthritisLinks: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3   DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Sep 30, 2023
1 hr 1 min
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