RareQoL is a not-for profit company based in Wales, UK. Our aim is to improve the quality of life for diverse, rare disease and under served communities.
RareQoL Learning is a new podcast station, for anyone wanting to learn more about our communities.
The focus of these podcasts will be on equality, diversity, inclusive research and practice.
Inside- Outside: A podcast for Rare Disease Day.
Sondra Butterworth from RareQoL talks to Shanali Perera about her journey from being a Doctor to a rare disease patient