Show notes
As we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relationships, public policy, and advocacy initiatives. She joins us to discuss how PAN helps people manage the financial burden of chronic illnesses. Amy also explains important updates to Medicare and some new insurance practices that can be harmful to patients with life-threatening, chronic, and rare diseases.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation project andwas made possible with the generous support of Genentech.SOCIAL & WEBSITE:Amy Niles & The PAN FoundationWebsite - https://www.panfoundation.orgFacebook - https://www.facebook.com/PANFoundationInstagram - https://www.instagram.com/pan.foundationTwitter - https://twitter.com/pan_foundationConnect With UsWebsite - https://www.sumairafoundation.orgFacebook - https://www.facebook.com/TheSumairaFoundationInstagram - https://www.instagram.com/demystifying_nmomogTwitter - https://twitter.com/DemystifyingNMOTIMESTAMPS00:02:02 Amy Niles & The Pan Foundation00:04:16 A Day in the Life00:05:54 Serving the NMO Comunity00:06:29 Eligibility Criteria00:09:03 The Application Process00:11:30 The Fund Finder00:14:58 Medicare Updates00:20:37 Copay Accumulators00:24:49 Alternative Funding Programs00:30:54 Do You Have a Copay Accumaltor?00:32:32 Legislation to Protect Patients & What You Can DoLINKS:Fund Finder - https://www.panfoundation.org/find-disease-fundFind help with FundFinder - https://www.panfoundation.org/fundfinderNeuromyelitis Optica Spectrum Disorder - PAN Foundation - https://www.panfoundation.org/disease-funds/neuromyelitis-optica-spectrum-disorderEverything you need to know about Medicare reforms - PAN Foundation - https://www.panfoundation.org/everything-you-need-to-know-about-medicare-reformsAsk your elected officials to support The HELP Copays Act and ban copay accumulator programs - https://www.panfoundation.org/end-copay-accumulatorsCREDITS:Producer & Host - Brian DawsonGuest Photo - The PAN FoundationMusic - Denys Kyshchuk from Pixabay
