Show notes
Episode 27 | Double Seronegative NMOIn this episode, we look at Double Seronegative NMO. We are joined by Nicole Helton to give us the patient perspective. Then Dr. Sara Mariotto, to learn more about testing and the future of the disease. Finally, Sumaira Ahmed talks about her personal experiences as a Double Seronegative NMO patient and the importance of advocacy in research and ensuring patients have access to appropriate care.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.SOCIAL & WEBSITE:Dr. Sara MariottoTwitter - https://twitter.com/SaraMariottoMDSumaira AhmedLinkedin - https://www.linkedin.com/in/sumairaahmed/Twitter - https://twitter.com/SumairaFlowerConnect With UsWebsite - https://www.sumairafoundation.orgFacebook - https://www.facebook.com/TheSumairaFoundationInstagram - https://www.instagram.com/demystifying_nmomogTwitter - https://twitter.com/DemystifyingNMOTIMESTAMPS/TOPICS:00:01:30 Nicole Helton, Patient Experience00:06:30 Self-doubt00:08:14 Accessing Treatment00:15:03 Dr. Sara Mariotto00:15:22 Defining Double Seronegative NMO00:21:42 Treatment00:25:05 Diagnostic Guidelines00:32:51 Research00:37:27 Finding a Doctor and Resources00:39:48 Sumaira Ahmed00:42:04 Barriers to Care00:43:10 Building Resources00:47:03 Advocating for Double Seronegative NMO00:50:39 Closing with Nicole HeltonLINKS:Double seronegative NMOSD with Dr. EoinFlanagan -https://youtu.be/pdYMQImBHp0Double Seronegative NMOSD Facebook Group -https://www.facebook.com/groups/6274134689359958CREDITS:Producer & Host - Brian DawsonMusic - Denys Kyshchuk from Pixabay
