Paralyzed by Guillain-Barré syndrome (GBS) as a new mom, Holly shares with us the heartbreak she felt when physical bonding with her baby would suddenly change as well as the beautiful ways she and her daughter were able to find paths to communicate and bond, despite her paralysis. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https:...
May 7, 2023
6 min
Justin shares the advice he would offer his younger self on overcoming the most emotionally challenging moments of a cancer diagnosis and treatment, now more than ten years in remission from stage III Hodgkin lymphoma. In this episode, Justin offers powerful and insightful advice on connecting with the present moment, on the impermanence of emotions, and on what we can learn when we give space to the feelings that arise. Please note that this discussion has been extracted from video rec...
Mar 18, 2023
6 min
Justin shares with us his experience of chatting, meeting, and falling in love with his partner over the same span of time when he was receiving his diagnosis and undergoing treatment for Hodgkin lymphoma. Join us for this discussion which touches on the complexities of dating, relationships, and finding love during cancer and in which Justin shares how his experience of cancer influenced a life-changing choice to lean in. Please note that this discussion has been extracted from video...
Dec 27, 2022
7 min
Justin was on the precipice of reclaiming his innocence after coming out, becoming sober from alcohol after college, and then building anew when he would face the untimely life disruption of a cancer diagnosis. Follow along as Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, lets us into his world. Stay tuned as he lends us perspective that can inspire courage and resilience in us all. Please note that this discussion has been extracted from video recordings that can be ...
Dec 5, 2022
5 min
Seventy-two hours after noticing a burning sensation in her finger, Holly was paralyzed from the neck down, in ICU, and on life support. Holly, now beyond a decade out from her Guillain-Barré syndrome diagnosis, shares some of her earliest experiences leading up to her diagnosis and treatment. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying t...
Nov 8, 2022
10 min
Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, shares some of his earliest experiences leading up to his diagnosis and treatment, including his early symptoms, a terrifying initial diagnosis, a life-saving procedure, and the miracle treatment that was not supposed to work, but which opened the door to save his life. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where w...
Oct 1, 2022
7 min
Jaymie shares life-saving pointers on how to really be seen and attended to by our doctors, on how to receive the healthcare we all deserve but which we sometimes have to fight for, and on how we can use “aggressive curiosity” to overcome the cards stacked against us, all of which she was forced to figure out for herself as a young Black woman battling stage IV lung cancer. If you ever need to seek treatment for any reason, Jaymie’s advice in this episode can seriously ease your path and perh...
Dec 29, 2021
12 min
Eva, Laura, and Robin discuss the need to shift priorities, to give energy to the things that matter most in life when faced with a life-threatening illness. Laura shares relationship challenges associated with mismatched expectations for where waning energy should be spent. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.y...
Dec 8, 2021
8 min
Jaymie discusses the importance of self-advocacy. She reflects on frustrations with prior medical care which led her to routinely drive two hours out of state to a different healthcare system in order to receive healthcare that meets her needs, healthcare that she deserves. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https:/...
Nov 24, 2021
9 min
Jaymie discusses what it’s like to remove liters of fluid from her lungs (PleurX catheter, lung drains to treat pleural effusion) while waiting for her lung cancer treatment to begin working. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1. DISCLAIMER: Chronic Love,...
Nov 10, 2021
7 min
Load more