
Alena & Raina Talk the Death of our Sons!
May 7, 2024
1 hr 4 min

Alena & John Talk Rosaries, Mala Beads & The Importance of Prayer or Meditation!
Apr 23, 2024
1 hr 4 min

Alena & Kate Talk of Her Journey of Being Christian and a Medium!
Apr 9, 2024
1 hr 2 min

Alena & Jodie Talk Mediumship Development & Being Yourself
Mar 26, 2024
1 hr 12 min

Alena & Christina Talk Embracing a Multidimensional Connection!
Mar 12, 2024
47 min

Alena & Mariah Talk Body Work, Somatic Release, the Elements & Rattlesnakes!
Feb 27, 2024
38 min

Alena & Lu Talk Plants and All of the Amazingness They Offer Us!
Feb 13, 2024
1 hr 1 min

Alena & Dawn Talk a Grief Recovery Program
Jan 30, 2024
46 min

Jillian is a partner to her husband Donald, mother to her two rare warriors, Roman (5) and Stella (4), host of the podcast Confessions of a Rare Disease Mama, and rare disease advocate. She is very passionate about propelling research forward for all types of diseases (most especially rare diseases) and has been able to fundraise over $130,000 for research for her children's genetic condition (ASMD) over the past two years. In addition to her roles as a podcast host and full time caregiver/medical mama, she is also a member of the Research Participant Advisory Committee at Cincinnati Childrens, as well as the Genomic Information Commons Participant Advisory Panel and sits on the Family Support and Assistance Committee for the National Niemann Pick Disease Foundation. Her spiritual awakening began shortly after her children were diagnosed with their rare and life limiting condition and she has been deepening her spirituality since then. She feels her soul's purpose is to spread their journey far and wide and let others in similar circumstances know they are not alone. Despite the intense obstacles she has been given with her children, she is beyond grateful for this life with them and strives to find joy amongst the challenges.
https://www.confessionsofararediseasemama.com/
https://www.instagram.com/confessionsofararediseasemama?igsh=aXplazE0dmhkdnF3&utm_source=qr
https://saveromanandstella.com/
https://gofund.me/58005e69
https://www.facebook.com/confessionsofararediseasemama
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Contact Alena of Celebrate Every Step, LLC, at [email protected]
Find me on Facebook Instagram Website YouTube & TikTok all @ CelebrateEveryStep
See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jan 16, 2024
52 min

Jessi & Alena Talk Triggers, Parenting & True Self Love
Jan 7, 2024
56 min
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