John Graybill talks with Kathryn Bryant of the Speak Foundation about their newest project, "LGMD News", a magazine. This magazine is the first ever dedicated to bringing up to date research from clinicians to peoples homes via a magazine. In this magazine, LGMD News, you will only read about limb girdle muscular dystrophy, what research is happening, what organizations you can connect with-dealing with your specific type of LGMD, ask an Expert-where a doctor answers questions people submitted, Spotlighting an organization, basically anything you want to know about LGMD or where to go, you need to get this magazine. You can subscribe by going to The Speak Foundation and joining their "LGMD Patient Network" by clicking on that tab. It's so important to be a part of a patient led movement where "you" get to be the driving force towards a treatment instead of waiting for an organization that isn't patient led. The magazine comes out 4 times a year and is a MUST have if you have LGMD.
The Speak Foundation Patient Network
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"Desire to Inspire" TKG