Beyond Labels and Limitations
Beyond Labels and Limitations
John Graybill
Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular Dystrophy BL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
Episode 82: Button Pusher
On episode 82 of Beyond Labels & Limitations, John Graybill shared how just when he thought he was mature, at 44, his button pusher showed up, sending him back to his 12 year old self. It's hard to see the lessons the button pusher show us when it's happening. The important part however is not what they say but rather how it effects you and why are you effected by it. John gives examples from his life, and within the past week, where situations came up and he reacted. What John discovered was how important it was to look at the thoughts that had arisen and questioned them. By not giving in to the power of reaction, through questioning and observing, he saw that the reaction had less power over him.  ____________________ Connect with John: Website YouTube Channel Email: [email protected] _____________________ "Desire to Inspire" TKG
Feb 16, 2022
25 min
Episode 81: Meditation, Judgmental Johnny and Time Does Not Heal All Wounds
On episode 81 of Beyond Labels & Limitations, John Graybill shares an online meditation retreat he attended and how aspects of himself came out. Also, John shares how the saying "Time heals all wounds" is not true. The name of the retreat John briefly spoke about in the beginning of the podcast is Goenka. Here is the link: Goenka Meditation Retreat Website ______________________ Connect with John: Website YouTube Channel Email: [email protected] _______________________ "Desire to Inspire" TKG
Feb 10, 2022
24 min
Episode 80: Happiness is Healing, Chloe's 6th Birthday and Sleepy Mind with Muscular Dystrophy
On episode 80 of Beyond Labels & Limitations, John Graybill shares his daughters 6th birthday and what his daughter's friend shared with him that move him, how John's mind works in the morning, and a dream John had. The YouTube channel where John talked about Shane and SMA is Squirmy and Grubs: Squirmy and Grubs __________________ Connect with John: Website YouTube Channel Email: [email protected] ___________________ "Desire to Inspire" TKG
Jan 27, 2022
24 min
Episode 79: Changing the mentality of "How do I get rid of muscular dystrophy" to "How do I live with it"
On episode 79 of Beyond Labels & Limitations, John Graybill shares how he went from a "get rid of this disease" mentality to "How do I live with this." It wasn't easy at first questioning his beliefs/thoughts but once he saw them for what they were, self-limiting, he set out to dismantle their power over him. ____________________ Connect with John: YouTube Channel Website Email: [email protected] _____________________ "Desire to Inspire" TKG
Jan 21, 2022
16 min
Episode 78: Getting Covid and having Limb Girdle Muscular Dystrophy
On episode 78 of Beyond Labels & Limitations, John Graybill shares his experience with Covid. He breaks down the first week of his symptoms. After a week John was starting to feel like his old self. One important part for John was to take care of his immune system by taking Vitamin D3, Vitamin C, Zine, Quercitin, NAC. After a few days of taking these supplements John felt better. Now, could the supplements have helped him faster? It's hard to say whether they did or if it was something else. In any case, taking care of your body before/and especially when your sick is important. This was merely John's experience with Covid and it may not be yours. _______________________ Connect with John: YouTube Website Email: [email protected] ________________________ "Desire to Inspire" TKG
Jan 13, 2022
16 min
Episode 77: What have I learned from myself in 2021 with Limb Girdle Muscular Dystrophy
On this final episode of season 2 of Beyond Labels & Limitations, John Graybill shares what he has learned from himself over the past year while living with Limb Girdle Muscular Dystrophy. All was not bad. In fact, when John can create some distance from his "sufferings" is when he learns the most from muscular dystrophy.  Merry Christmas and Happy Holidays! _____________________ Connect with John: Website YouTube Channel Email: [email protected] _______________________ "Desire to Inspire" TKG
Dec 22, 2021
17 min
Episode 76: Having a Mobility Scooter Means What and A Cinderella Play
On episode 76 of Beyond Labels & Limitations, John Graybill shares what having a mobility scooter has done for him, what beliefs he had about having the scooter, and a play he went to with his family. There are lessons in everything and it's up to us to find them. _____________________ Connect with John: YouTube Channel Website Email: [email protected] ______________________ "Desire to Inspire" TKG
Dec 15, 2021
16 min
Episode 75: Self Esteem with Limb Girdle Muscular Dystrophy
On episode 75 of Beyond Labels & Limitations, John Graybill talks about self esteem and living with a disease like muscular dystrophy.  ________________________ Connect with John: Website YouTube Channel Email: [email protected] _________________________ "Desire to Inspire" TKG
Dec 8, 2021
15 min
Episode 74: When I Get Sick and Thanksgiving Take Away
On episode 74 of Beyond Labels & Limitations, John Graybill shares what it is like to be sick and what he got from his Thanksgiving get together.  _____________________ Connect with John: Website YouTube Channel Email: [email protected] ______________________ "Desire to Inspire" TKG
Dec 1, 2021
15 min
Episode 73: Chloe Climbs a Wall, Bathroom Get Up & Thanksgiving
On episode 73 of Beyond Labels & Limitations, John Graybill shares his daughters success climbing a rock wall, how that inspired him to get up from the toilet after a long day sitting in a scooter and what can you be thankful for with having LGMD. ___________________________ Follow John: Website YouTube Channel Email: [email protected] ___________________________ "Desire to Inspire" TKG
Nov 24, 2021
15 min
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