Jen and John talk about when they noticed the first signs that something wasn’t right with them, how it was interpreted by their peers, and eventually getting diagnosed.They also share on this episode some advice for those of you with the diagnosis and those of you who haven’t gotten their exact diagnosis yet.  FREE patient programs to get a genetic diagnosis are: <ol> <li style="font-weight: 400;">Invitae Program: <a href= "https://www.invitae.com/en/sponsored-testing/">https://www.invitae.com/en/sponsored-testing/</a></li> <li style="font-weight: 400;">Perkin Elmer Lantern Program: <a href= "https://www.perkinelmergenomics.com/lanternproject/">https://www.perkinelmergenomics.com/lanternproject/</a></li> </ol> ___ For more information and how to connect with Jen and John, please visit us at: Beyond Labels & Limitations website:<a href= "http://www.beyondlabelslimitations.com/">www.BeyondLabelsLimitations.com</a> By Email:BLLjenjohn@gmail.com John Graybill's <a style= "font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;" href="https://www.youtube.com/user/John71377">YouTube Channel </a> ___ “Desire to Inspire” - TKG

Episode 003: Dealing with Falls

Welcome to the podcast for Beyond Labels & Limitations. 

John talks about living a life with Muscular Dystrophy

BL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.