Being Patient
Being Patient
Being Patient
Being Patient's founder Deborah Kan resigned from her job as Executive Producer at the Wall Street Journal to redesign reporting on health, after her mother was diagnosed with Alzheimer’s disease. In the Being Patient Podcast, we examine the latest research on the prevention, treatment and care of the disease from the patient’s point of view. We give patients and carers the tools to map the landscape of the disease and go straight to the expert community to get the answers they want to know. We aim to elevate the patient’s voice in important conversations and help researchers understand their patient communities. Make sure to go to http://beingpatient.com/ to receive our latest news and updates.
Managing Speech Impairment in Dementia | LiveTalk | Being Patient
Being Patient sits down with speech-language pathologist Vicky Fukuhara to discuss the symptoms of language impairment in dementia and how speech therapy may help people cope with their decline in communication abilities. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Mar 9, 2021
32 min
An Inside Look at Cassava's Experimental Alzheimer's Drug | BrainTalk | Being Patient
Being Patient speaks with President and CEO of Cassava Sciences Remi Barbier about the company's development of an investigational Alzheimer's drug called simufilam, and how scientists are diversifying their approach in finding an effective treatment for the disease. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Mar 9, 2021
53 min
Frontotemporal Dementia at the Age of 29 | BrainTalk | Being Patient
Being Patient speaks with Dawn Kirby about the journey of caregiving for her daughter who was diagnosed with frontotemporal dementia at 29 years old. Dr. Brad Dickerson, director of the Frontotemporal Disorders Unit at Massachusetts General Hospital, joins us to discuss the diagnostic process and treatment of the brain disorder. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/​
Mar 9, 2021
41 min
Designing a Safe Living Space For a Loved One With Dementia | LiveTalk | Being Patient
Being Patient speaks with Grant Warner, principal at HKS Architects, about ways to modify a home environment and installations available to create a safe living space for a loved one with dementia. For more about Aging-in-Place certified contractors, visit the website of the National Association of Home Builders: https://www.nahb.org/education-and-ev...​ We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Mar 9, 2021
20 min
Caregiver Strategies To Manage the Feeding Difficulties of Dementia | LiveTalk | Being Patient
Nicole Rogus-Pulia, a speech-language pathologist and an assistant professor of medicine at the University of Wisconsin-Madison, discussed the symptoms of eating and swallowing difficulties in dementia, and caregiver strategies to help a loved one dine with dignity. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our LiveTalks, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 21, 2021
35 min
A Hollywood Duo's Mission To Fight Alzheimer's | Being Patient | LiveTalk
Husband and wife celebrities Seth Rogen and Lauren Miller Rogen shared insights about how Alzheimer’s has touched their personal lives and their work in raising awareness about the disease through their nonprofit organization HFC. For more information about HFC: https://wearehfc.org/​ We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our LiveTalks, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 21, 2021
35 min
Understanding The Stages of Dementia | LiveTalk | Being Patient
Dr. Zaldy Tan, director of the Cedars-Sinai Health System / Memory & Aging Program, spoke about the common symptoms of dementia in the early, middle and late stages of disease. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/​ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient​... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 21, 2021
31 min
Antipsychotics And Managing Dementia Symptoms | LiveTalk
Dr. Dylan Wint of the Cleveland Clinic discussed the neuropsychiatric symptoms of dementia such as psychosis, aggression and depression, as well as the risks and benefits of different treatment options. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 8, 2021
24 min
Managing Driving And Dementia | LiveTalk
Linda Ercoli, health sciences clinical professor of psychiatry and biobehavioral sciences at UCLA, discussed ways to handle driving after a loved one's dementia diagnosis, from spotting the warning signs of dangerous driving to planning for alternative transportation. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 8, 2021
36 min
Coping With The Financial Cost Of Dementia | LiveTalk
Emmy Award-winning husband and wife Robert Ferrier and Daphne Glover, filmmakers of "SPENT: The Hidden Cost Of Dementia," discussed the economic and human impact of dementia. Robyn Wendt, who is featured in the documentary, was joined by her partner Mark Behnke. The former caregivers shared the financial and emotional toll they endured after their loved ones were diagnosed with dementia. To watch "SPENT: The Hidden Cost Of Dementia," click here: https://vimeo.com/ondemand/spent/ --------------------------------------------------------------------------------------------------------------- We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Feb 8, 2021
24 min
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