Kristyn Newbern shares her final thoughts, thanks, and hopes for her season's impact on others. Kristyn delivers an epic mic-drop in this final episode of Season Two. As you might expect, Kristyn departs this season with absolutely stunning grace as she eloquently details her hesitations and motivations for publicly sharing her story.   Join us at the Cardinal Glennon Children's Foundation Sun Run next Sunday, October 16th. There is still plenty of time to sign up to join Luke's SkyWalkers Team! Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Kevin Newbern details his experience as a rare disease & heart dad — an intimate look into life, love, and disability parenting. Kristyn is joined by her loving husband and proud father of Luke and Ozzie, Mr. Kevin Newbern. It is incredibly rare to see or hear the father’s perspective on life as a rare disease parent. Kevin shares his story, thoughts, and feelings on life as a Heart Dad. As they explain throughout this episode, becoming a parent to a child with a life-threatening health condition transforms you, and that transformation isn’t always easy. It is full of fear, sadness, discomfort, and uncertainty - all rooted in the profound love for your child. It's that same love that helps us to persevere on. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton   --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Kristyn Newbern shares her perspective on the adventure of being a season-long podcast guest-host on Atypical Truth. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton   --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Rare Disease Grandparent, Dr. Donna Cartwright, details what it is like to watch your child enter the world of disability parenting. This episode focuses on the support and perspective of grandparents. Dr. Donna Carthwright shares the love and pride she feels for her daughter and the family that Kristyn and Kevin have fought hard to build. Prepare to fall in love with this mother/daughter duo. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton   --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Kristyn Newbern provides a storied dedication to those special people who exist beyond the microphone. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Inclusive parenting, insightful advice for friends of parents facing a different parenting journey, and a heartfelt thanks to the friends who never stop showing up. Kristyn Newbern is joined by two close friends, Alice and Lauren, who share what it was like to support their friends through a difficult prognosis. They discuss how this experience has shaped their approach to inclusive parenting and the challenges they anticipate facing as their children continue to grow up together. They also provide some insightful advice to other friends and family members who may find themselves trying to show support from the sidelines. And finally, Kristyn shares a heartfelt letter to her friends, which I think will resonate with many parents of children with rare diseases and disabilities. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton     --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Kristyn Newbern and Jen Schuerman, physical therapist, discuss the importance of PT for children with disabilities. Pediatric therapists become lifelines in the lives of parents and caregivers, teaching them how to empower their children with disabilities. If you are someone who has had the experience of interacting with an early childhood therapist, you likely already know just how special these people are. Today’s episode will remind you of the hard work these professionals have signed up for. Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Today’s episode is dedicated to honoring the beautiful life of our little friend, Josie Fernandez.  Josie’s life was filled with so much love. Love for her family, her friends, and so much love for her four-legged friends. To honor all the love that she brought into this world, I put together a montage of love for our little Rapunzel.  Our hearts are with Josie’s family as they navigate the unimaginable. Please keep this family in your prayers. For those who would like to help them through this challenging time, I will be sure to add a link to their donation page as soon as it is ready. You can listen to Josie’s full story in all of its beauty in the episode “Love Needs No Words” from Season One. --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Medical moms Kristyn Newbern and Nichole Rosenberger discuss hard but necessary conversations we should all be having but often avoid for fear that people would not understand. Once again, Nichole Rosenberger has joined Kristyn and Erica to discuss everything from finding solace in the connections we have made with other rare disease families, the change in our perspective regarding our identity as parents of children with disabilities, the burden that mothers feel with the societal pressure of having a "healthy baby," our experiences concealing a second pregnancy, and the challenging decisions we came to when each learned that we were carriers of a life-threatening genetic disease. Finally, Kristyn and Nichole share their thoughts on how they one day plan to explain these decisions to their children. This episode is the finale of this 3 part series which has centered around the subject of IVF and Preimplantation Genetic Testing (or PGT). Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Genetics, reproduction, fertility, and the role of IVF with preimplantation genetic testing (PGT) as a reproductive option with Kristyn Newbern and genetics counselor Marisa Andrews. Genetics counselor Marisa Andrews joins Kristyn to discuss IVF with PGT, which is just one of many family planning options couples have if there's a known risk of passing down a severe or life-threatening genetic disease.  Marisa helps to explain the process you might experience on this journey. First, she touches on genetic testing and the different types of genetic results. Then she explains the process of pre-implantation genetic testing or PGT and in vitro fertilization, also called IVF. Helpful Links: National Society of Genetic Counselors Preimplantation Genetic Testing (PGT) In vitro Fertilization (IVF) Genetic Testing 101 Transcription and Merch can be found at www.atypicaltruth.org Into and Outro Music by Amiina Episode Cover Art by Eric McJilton     --- Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support