This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child or young adult, and the later impacts of the cancer treatment they underwent during the critical formative years. Airing Pain speaks to experts on the longitudinal impacts of cancer for these age groups; across medical, physical, and psychosocial.   Pain and fatigue are commonly reported as the most significant negative impact on quality of life when living with cancer. Until quite recently there has been little research in the area of living with cancer and experiencing medical treatments for cancer as a child or young adult during the critical formative years, and even less so on the long-term impacts these treatments can have throughout later adulthood.   Our contributors discuss a variety of determinants that impact long-term effects such as type of treatment, type of cancer, their personal resilience, and their family and social support networks. We also hear of the opportunities in improving cancer care for these age groups, particularly with the difficult transition from child to adult care units.  Contributors:  - Emeritus Professor Sam Ahmedzai, NIHR National Specialty Lead for Cancer  - Professor Diana Greenfield, Senior Consultant Nurse at Sheffield Teaching Hospitals Trust  - Ceinwen Giles, Co-CEO, Shine Cancer Support  Time Stamps:  0:50 Paul introducing Emeritus Professor Sam Ahmedzai, an internationally recognised pioneer in setting up palliative medicine. 2022 British Pain Society interview. 2:53 Discussion around later hormonal effects of some successful treatments used to eradicate and manage cancer in children and teenagers. 5:54 Professor Diana Greenfield, Senior Consultant Nurse at Sheffield Teaching Hospitals Trust, NHS, on the transition between paediatric to adult cancer care. 13:18 The importance of family-centred care. Defined as a house or unit of care that can be traditional or non-traditional but represents a holistic support network. 18:00 Ceinwen Giles, Co-CEO, Shine Cancer Support, working to provide support for people in their 20s 30s and 40s who have lived with cancer and chronic cancer. 19:00 Ceinwin Giles talking on her personal experience of receiving treatment for non-Hodgkin lymphoma and challenges in finding peers her own age who share her experiences. 21:54 Managing early-life considerations alongside cancer. Career uncertainty, mental health in jobs, as well as fertility, relationships, and dating. 23:00 The difficult transition from child to adult care, in terms of having fewer people and services supporting as an adult. There are opportunities to improve the easing of this transition, especially following the pandemic where services are stretched. 25:20 Invitation to respond to the Airing Pain survey. 26:02 Summary of the key take home messages for children and young adults, and those caring for them. Additional Resources:   Airing Pain 140: Childhood Pain - Adverse Experiences and Parental Relationships Shine Cancer Support Families and Children Resource Page  Airing Pain 118: Pain Management in Young People 

This edition of Airing Pain is on the topic of early childhood experiences.   (Content warning: includes abuse, neglect, and household dysfunction)  The World Health Organisation states that ‘adverse childhood experiences (ACE) can have lifelong consequences on a person’s health, and well-being, and can lead to a person developing persistent pain in later life’. A lot of this research is conducted in adults, and of course with changes in attitudes and beliefs surrounding raising children over the years, would they consider events in their childhood to be adverse?  Listen to learn more about this complex discussion. Find out how this kind of trauma in formative years impacts neurobiologically on the stress response, and causes changes on a structural and functional level in the brain that can predispose young people not only to pain but depression, cardiovascular disease, behaviours with increased health risks, and can have impact on mortality.   Contributors:  Dr Katie Birnie, Clinical Psychologist at the University of Calgary, on the importance of validating pain in young people.    Professor Lesley Colvin, Project Lead at Consortium Against Pain InEquality (CAPE) and Professor of Pain Medicine at the University of Dundee, and consultant in pain services.  Jen Ford, DRAP Pain Physio & Therapy Lead at Bath Centre for Pain Services & Bristol Paediatric Pain   Professor Lesley Colvin, Project Lead at Consortium Against Pain InEquality (CAPE)   and Professor of Pain Medicine at the University of Dundee, and consultant in pain services.  Professor Tim Hales, Project Lead at CAPE and a non-clinical Professor of anaethesia at the University of Dundee.  Dr Lauren Heathcote, Senior Lecturer in health psychology at Kings College London  Timestamps  2:06 Prof Tim Hales discusses the impact on ACE on chronic pain and how people respond to treatment.  7:02 Prof Lesley Colvin Professor on how ACE causes persistent pain.  16:05 Dr Lauren Heathcote discusses the psychology of pain and symptom perception in young people.  23:26 Jen Ford on the different approach required when working with children.  26:05 Dr. Katie Bernie explore the importance of children and family partnerships.  Related links  CAPE Consortium Against Pain InEquality  Health Scotland – Adverse Childhood Experiences   TED talk: Carol Dwerk – The Power of Believing you can improve  Bath Centre for Pain Services  Airing Pain survey Pain Concern Children and Families resources 

This edition of Airing Pain was recorded at the Living Well with Persistent Pain in Wales conference during Pain Awareness Month in September 2023. The topic of the conference was the launch of the revised Persistent Pain guidance first published in 2019.  The COVID-19 pandemic has changed how we live and access services. How are healthcare professionals who treat patients with persistent pain capitalising on this improved digital literacy by using a digital-first approach to improve the patient experience at their clinics? With the aim of this year's conference being to see the person and not the symptoms, how can the patient's voice be heard and kept central to ensure this is done? And finally, how can the Third Sector and the NHS work more cohesively to work towards this goal? Listen or read the transcript to find out more.  Contributors  Bethany Davies Health care support worker, Aneurin Bevan University Health Board Gethin Harries, Physiotherapist, Powys Health Board (Powys Living Well Service).  Eluned Morgan MS, Health Minister  Owen Hughes National Clinical Lead for Persistent Pain in Wales  Stephen Allan, Regional Director New Citizen’s Voice Body for Wales  Dr Sue Jeffs, National Clinical Lead for Persistent Pain Patient organisation representatives  Mary Cowern Head of Nation for Cymru Versus Arthritis  Heather Wallace, Pain Concern  Representatives of other organisations present at the event, including Health Education for Improvement Wales, Real City Strategy North Wales, Cardiff and Vales University Health Board and Case UK Ltd. Read Transcript  Feedback survey Timestamps  0:35 Eluned Morgan MS welcomes delegates to the launch of the revised Living With Persistent Pain in Wales guidelines.  3:04 Owen Hughes explains the updates to the guidelines. 6:04 Eluned Morgan MS on the feedback received regarding the guidence and how it can continue to evolve.  6:35 Representatives from Real City Strategy North Wales and Powys Living Well Service discuss how those living with pain can be supported. 12:48 Eluned Morgan MS and a representative from Cardiff and Vales University Health Board talk about self-management and peer support groups.  23:59 Mary Cowern, Neil Fowler and Bethany Davies on how the guidelines will impact their organisations.  37:39 Eluned Morgan MS on the need to reduce ineffective treatments.  38:35 Information on upskilling for healthcare professionals from Catrin from Health Education and Improvement Wales.  40:38 The Patient Voice – Stephen Allan, Eluned Morgan MS and Dr Sue Jeffs on the importance of patients informing on the services available.  48:11 Heather Wallace reflects on the event and a final request about person-centred care from Eluned Morgan MS.  Additional Resources  Living with Persistent Pain in Wale Guidance  eppcymru.org  All Wales Analgesic Stewardship Guidance   CaseUK Versus Arthritis Airing Pain 109 Fibromyalgia   Airing Pain 121: Living with Persistent Pain in Wales  Well-being of Future Generations (Wales) Act 2015 

Is self-compassion a trait or a state of being? This edition is inspired by findings that suggest stronger self-compassion is associated with reduced impact of chronic pain. Self-compassion, in this sense, is the ability to respond to pain and difficulties with kindness and openness rather than criticism. In this episode we ask our artistic contributors, and ourselves, how to step towards achieving self-compassion and the importance of movement in looking after our bodies.  This edition of Airing Pain was made possible by the invaluable contributions of our participating artists who showcased their works at the Edinburgh Fringe Festival, and those in the academic field. We learn the motives behind using dance as a way of supporting those in pain, but also expressing and communicating pain to audiences. Contributors: Dr Sarah Hopfinger, Artist and Researcher (Edinburgh Fringe: “Pain and I”) Victoria Abbott-Fleming MBE, Founder of the Burning Nights CRPS Dr Emma Meehan, Associate Professor, Centre for Dance Research, Coventry University Tali Foxworthy Bowers, Choreographer and Movement Director (Edinburgh Fringe: “Monoslogue”) Jenna Gillett, PhD Student, Department of Psychology University of Warwick The music used at the beginning of this edition was an original composition for Pain & I by Alicia Jane Turner. Images provided by Sarah Hopfinger. Read transcript Time Stamps: 1:35 – Miriam Introduces Sarah Hopfinger’s “Pain and I” performance during Edinburgh’s Festival Fringe, and asks what techniques from the world of dance offer those living with pain? 3:41 – Pacing as a technique. Also see 13:25 for Sarah Hopfinger on pacing. 6:34 – Emma Meehan, at the British Pain Society, on how dancers living with pain approach pain. 8:34 – Introducing Tali Foxworthy-Bowers 15:54 – A huge thank you, and invitation, for filling in our survey 16:20 – Emma Meehan and research into what somatic practices in movement can offer those living with pain. 18:20 – The importance of sharing and telling stories about pain experiences as an act of self-compassion for performers, and mutual connection. See also 25:53 for a continuation of this sentiment from Tali Foxworthy Bowers. 21:25 – Pain catastrophising, how we frame pain, and techniques for being kinder to ourselves with self-love and compassion. 27:54 – Suggestions of how to support those close to you who are living with pain. 31:34 – Emma Meehan discussing agency with pain, as showcased at the British Pain Society ASM 2023. 35:10 – The role of charities in patient support, and what else can charities be doing? 37:27 – Chronic pain is chronic strength: acceptance of pain as part of the bodies we love and care for. Additional Resources: Burning nights  NHS Resources Somatic Practice Dr Meehan's Book: Performing Process

This edition discusses the challenges and opportunities of de-prescribing; and poses a shift in focus towards supported self-management and de-medicalising the management of pain for some patients.

This edition of Airing Pain platforms four internationally recognised clinicians from the British Pain Society Annual Scientific Meeting.

This edition of Airing Pain examines how Covid-19 has impacted on the relationship between patient and healthcare professional.

Warwick Study of Mental Defeat in Chronic Pain What is mental defeat and does it have an impact on the experiences of those living with pain? In this edition of Airing Pain, Paul Evans interviews the team at the Warwick Study of Mental Defeat in Chronic Pain (WITHIN Project) and research participants, as well as taking part in the study as a participant himself.

How the symptoms of long COVID are being managed using group consultations and the many things long COVID has in common with other long-term conditions. Now that COVID has become a part of our day-to-day lives, so too has long COVID. So, with so much money now being directed towards researching treatments for long COVID, how might this impact the way we treat all manner of chronic conditions? In this episode of Airing Pain, Paul Evans interviews the team at the Berkshire Pain Clinic, who run a specific long COVID service, on treating people with the condition. Notably, there are many similarities between the symptoms of long COVID and the symptoms of other long-term conditions, such as fibromyalgia or chronic fatigue syndrome. Issues like managing pain, fatigue, sleep and pacing are not only common in those with long COVID, but those with chronic illness in general. This raises the possibility that the money being spent now on long COVID may have a far wider reaching benefit in the long term. The team at the Berkshire Pain Clinic have already found success in using group consultations to manage long COVID. Listen, or read the transcript, to find out how these consultations are run and why they are proving so beneficial. Issues covered in this programme include: group consultations, long COVID, self-management of long-term conditions, fibromyalgia, fatigue, brain fog, shortness of breath, pacing, sleep problems, building support networks, managing mood problems and goal setting. Time Stamps: 02:02 – Dr Deepak Ravindran explains how existing knowledge can help us to manage long COVID. 08:22 – Dr Rupa Joshi explains how group consultations can provide support to those with long-term conditions. 11:09 – how did group consultations start at the Berkshire Pain Clinic? 13:50 – Dr Rupa Joshi discusses how both patients and healthcare professionals can learn from group consultations. 14:17 – how do group consultations for long COVID differ from those for other health conditions? 15:33 – Dr Deepak Ravindran on how our understanding of COVID and long COVID have changed. 18:52 – Caroline Mole shares her experience of long COVID, pain and fatigue and how it has impacted her life. 20:25 – Dr Deepak Ravindran shares how his experience of COVID gave him perspective on the experiences of his chronic pain patients. 21:54 – how funding for long COVID can help those living with other long-term conditions. 24:25 – Airing Pain producer Paul Evans shares his experience of fibromyalgia and how it has a lot in common with long COVID. 26:04 – could the treatments we discover for long COVID be used for people with other conditions? 27:13 – Caroline Mole explains what it was like to have a long COVID flare up and her struggles with fatigue. 29:08 – Greg Scott on talking therapies and managing the mental health aspects of long COVID and other conditions. 32:06 – Health and Wellbeing Coach Fatema Hafizji on empowering people with long-term conditions to achieve their goals. 35:54 – Personal Trainer Kerry Doe explains how she supports people to return to exercise following COVID. 40:38 – Saira Mirza on the role of the physiotherapist in managing long COVID and other conditions and the importance of breathing techniques. Contributors: Dr Deepak Ravindran, Clinical Lead for Pain Medicine and Clinical Lead for the Berkshire LongCOVID Integrated Service at Royal Berkshire Hospital Dr Rupa Joshi, Managing Partner at Woodley Centre Surgery Caroline Mole, who lives with long COVID and is a participant in the long COVID group consultation programme. Greg Scott, Cognitive Behavioural Therapist for ‘Talking Therapies‘ a psychological service of the Berkshire Healthcare NHS Foundation Trust. Fetama Hafizji, Health and Wellbeing Coach for the Wokingham North Primary Care Network Kerry Doe, a personal trainer who works with long COVID patients. Saira Mirza, Advanced Physiotherapy Practitioner for long COVID and pain management Special Thanks: This edition of Airing Pain has been funded by grants from the James Weir Foundation, the Hospital Saturday Fund and the Erskine Cunningham Hill Trust. More Information: Pain Matters 78: managing pain during the coronavirus pandemic Airing Pain 122: the many faces of research and fibromyalgia Long term effects of coronavirus (long COVID) Deepak Ravindran Long COVID playlist – Youtube

How do you identify illness in young children and coping as a family. This Airing Pain was recorded at the Scottish Network for Arthritis in Children SNAC’s 2022 Family Weekend at Crieff Hydro, which brings together families recently affected by juvenile idiopathic arthritis and some of the country’s leading paediatric rheumatology experts.  Issues covered in this programme include: juvenile idiopathic arthritis, autoimmune disease, coping as a family, rheumatology, paediatrics, support networks, identifying illness in young children, movement and exercise Time Stamps: minutes: seconds 00:00 - introduction to SNAC's family weekend by Sharon Douglas 04:03 - introduction to juvenile idiopathic arthritis by Julie Duncan 07:13 - how does juvenile idiopathic arthritis present? 09:00 - what is SNAC and personal stories from a parent. 12:56 - parent of a child with juvenile idiopathic arthritis shares how they first spotted it. 14:42 - Vanessa Raimondo discusses medication options for juvenile idiopathic arthritis. 18:44 - parents & children share their stories. 21:33 - Vanessa Raimondo discusses medication side effects. 23:57 - Alison Ross discusses coping mechanisms for juvenile idiopathic arthritis & more on medications and treatments. 30:23 - parent of a child with juvenile idiopathic arthritis on her daughter's journey with JIA, medications and diagnosis. 31:15 - coping as a parent of a child with juvenile idiopathic arthritis. 31: 54 - coping with juvenile idiopathic arthritis as a family 34: 29 - parents of a child with juvenile idiopathic arthritis share their family's story. 39:10 - how does juvenile idiopathic arthritis make the children who suffer from it feel? 41: 18 - family from Shetland share their story of having a child with JIA in a remote area. 43:27 - Jo Walsh tells us about SPARN (Scottish Paediatric & Adolescent Rheumatology Network) and how they support families with JIA. 47:00 - how to handle the transition from children's health services to young adult services. 48:06 - Vanessa Raimondo tells us about what we can do (aside from medications) to manage JIA. 49:27 - young person shares their experience of juvenile idiopathic arthritis and still enjoying sports, exercise and success growing older with JIA. 54:20 - Sharon Douglas, chairperson and co-founder of SNAC, conclusion and raising awareness about JIA.  Special Thanks: This programme exists due to funding from Trefoil House Organisational Grants, the New Park Educational Trust and WCH Trust for Children. Contributors: Parents (and their children) of 23 children between the ages of 5 and 14 who have juvenile idiopathic arthritis.  Sharon Douglas - SNAC (Scottish Network for Arthritis in Children) chairperson & co-founder.  Julie Duncan – General Paediatrician NHS Lothian District General Rheumatology Clinic.  Vanessa Raimondo - Rheumatology Nurse based in Edinburgh.  Alison Ross – Children’s Arthritis Nurse working in Aberdeen.  Jo Walsh – Paediactric Rheumatologist based in Glasgow, working as part of SPARN (Scottish Paediatric and Adolescent Rheumatology Network).  More Information: SNAC - Supporting Children & Families with JIA Versus Arthritis SPARN - Scottish Paediatric & Adolescent Rheumatology Network Airing Pain 106 - Pain Education for Doctors, Patients and Parents Airing Pain 99 - Transition Services for Adolescents with Chronic Pain Airing Pain 78 - Putting Children's Pain in the Picture Airing Pain 59 - Pain in the Family: Young Adults 1 of 2 Airing Pain 60 - Pain in the Family: Young Adults 2 of 2