4D: Deep Dive into Degenerative Diseases - ANPT

Note to listeners: We want to hear from you! We value listener feedback and are always working to improve our podcast. Share your 4D podcast feedback with us here: https://forms.gle/NKAC5Lob5rxpZ3459    In this special 3-year anniversary episode of 4D, host Parm Padgett and DDSIG secretary and podcast editor Sara Zoeller dive into the world of neuro-rehab and the pet peeves that come along with it. From terminology to exercise intensity to balance, we hear from previous guests and board members about what they are itching to correct in neuro PT practice. Join us with special guests Anne Kloos, Jeannie Stephenson, Herb Karpatkin, Lori Quinn, Vanina Dal Bello-Hass, Judy Deutsch, Alicia Flach, Amy Yorke, and Julie Hershberg as they share their personal pet peeves when it comes to neuro rehabilitation.   The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.  Show notes  To learn more about the Moving Forward/Evidence Elevates Task force, check out their site on the ANPT website here: https://neuropt.org/practice-resources/best-practice-initiatives-and-resources/moving-forward  Guests  Vanina Dal Bello-Haas PT, PhD  Judy Deutsch PT, PhD  Alicia Flach PT, DPT  Julie Hershberg PT, DPT  Herb Karpatkin PT, DSc  Anne Kloos PT, PhD  Lori Quinn PT, EdD  Jeannie Stephenson PT, PhD  Amy Yorke PT, PhD 

In this episode, we highlight one of the winners of our poster awards at CSM 2022. Lindsay Fitchett talks to Chris Burke about her group’s systematic review of wearable sensors assessing balance and mobility in people with PD. They discuss themes from the review including differentiating PIGD and tremor-dominant subtypes, looking at fall risk, assessing movement strategies/transfers, and sensor-based interventions. They also discuss potential future avenues for sensors in rehab.  The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org 

In this episode, we highlight one of the winners of our poster awards at CSM 2022. Jason Longhurst talks to Katy McGraw about his research on gait characteristics in people with PD. His research looks at data from people without freezing, people with freezing on initiation, and people with non-initiation-type freezing. He discusses the role of gait variability in clinical presentation and expands on how this research might inform PT intervention and make interventions more specific to patients with different presentations in the future.  The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org  Guest information:  Jason Longhurst Ph.D., PT, DPT, NCS  Assistant Professor St. Louis University  Related Articles   Ziegler K, Schroeteler F, Ceballos-Baumann AO, Fietzek UM. A new rating instrument to assess festination and freezing gait in Parkinsonian patients. Mov Disord. 2010 Jun 15;25(8):1012-8. doi: 10.1002/mds.22993. PMID: 20310009. 

Description: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is definitely worth a listen!  The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org   Guest Information:   Lori Quinn, PT, EdD  Associate Professor of Movement Science & Kinesiology  Teachers College, Columbia University  Related Information/Links   Huntington’s Disease Society of America (HDSA): https://hdsa.org/  European HD Network: http://www.ehdn.org/   ENGAGE-HD workbook: http://www.ehdn.org/wp-content/uploads/2020/07/ENGAGE-HD-Physical-Activity-Workbook-v2-UK.pdf   PT/Exercise Resources: http://www.ehdn.org/physiotherapy-wg/#physioresources   Enroll-HD: https://www.enroll-hd.org/   HD PRO-TRIAD: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3990832/ (Carlozzi NE, Victorson D, Sung V, et al. HD-PRO-TRIAD Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease. Tremor Other Hyperkinet Mov (N Y). 2014;4:223. Published 2014 Apr 14. doi:10.7916/D8PN93NZ)  Unified Huntington’s Disease Rating Scale (UHDRS) https://www.sralab.org/rehabilitation-measures/unified-huntingtons-disease-rating-scale-uhdrs-tm 

Strategies to Advance Practice – with Elissa Held Bradford In this episode, we highlight the article “Health Promotion and Wellness in Neurologic Physical Therapy: Strategies to Advance Practice” from the April 2022 issue of JNPT by Rafferty, et. al. Parm is joined by one of the authors, Elissa Held Bradford, to discuss how to implement health promotion and wellness topics into daily PT practice. They expand on the role of health promotion and wellness across multiple practice settings and delve into the healthcare delivery models outlined in the paper.   The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org  

A Clinical Practice Guideline (CPG) for PT management of PD was recently published in the Physical Therapy & Rehabilitation Journal in December, 2021. In this episode, Parm talks to Miriam Rafferty, an author of the CPG and co-chair of the CPG knowledge translation task force, about the development of this new guideline. They discuss the goals of the CPG and highlights intervention featured in the paper, as well as nuances about application to PT practice. This podcast gives both an introduction to the CPG for listeners who haven’t read it, and “behind the scenes” insights for listeners who have.   If you are listening to this podcast before 3/28/22 and want to give the KT task force feedback, please fill out this survey: https://redcap.dial.sralab.org/surveys/?s=ARPCH7T8YR  Show notes area available through this link. The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org  

In this episode, Parm talks to the authors of the winners of the the DD SIG poster awards at the 2021 ANPT annual conference. Dr. Rashelle Hoffman discusses aspects of fatigue related to Multiple Sclerosis and Dr. Rebecca Martin discusses the effect of modeling and cueing on sit to stand transfers in individuals with Parkinson’s Disease.   The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org. 

 In this episode, Parm talks to Mark Mañago about his recent publication in PTJ about the changing landscape of community exercise classes. Parm and Mark review the results of the study’s survey that asked exercise class participants with PD and exercise group leaders to identify facilitators and barriers to virtual and in-person class. They also discuss observed changes in activity level in the people surveyed. Parm and Mark brainstorm some real-world solutions to the barriers identified to help listeners start problem solving for their own classes and patients.  

In this episode, Rebecca talks to Rupal Patel, a founding member of the APTA Health Promotion and Wellness Council. They discuss the council and how it relates to patients with degenerative diseases. They highlight different areas of wellness and ideas for promoting healthy lifestyles at the individual, community, and society levels. Don’t miss these practical tips and resources for clinicians.  The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org. 

In this episode, Parm talks to Dr. Zajac and Dr. Ellis about their paper in the October 2021 issue of JNPT “Are Mobile Persons With Parkinson Disease Necessarily More Active?” Parm dives into the methods and results with Dr. Zajac. Then, she zooms out to talk about big picture implications including measuring and defining performance and participation with Dr. Ellis.   The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.