PodcastDX
PodcastDX
PodcastDX
PodcastDX is an interview based weekly series. Guests share experience based medical insight for our global audience.  We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis. We encourage anyone wanting to share their story with our listeners to email us at info@PodcastDX.com ​
Long Covid With Grace Miller
This week we will discuss a topic that is of concern for millions of people: "Long Covid" and our guest this week is Grace Miller.  Grace is 20 years old, and lives in Iowa. Currently attending college, where she is president of the honor society and finishing up her gen eds. She plans on pursuing a degree in Communication Disorders and become a speech pathologist. Some of her hobbies include crocheting, singing, playing the piano, and learning.  Some people who have been infected with the virus that causes COVID-19 can experience long-term effects from their infection, known as Long COVID or Post-COVID Conditions (PCC). Long COVID is broadly defined as signs, symptoms, and conditions that continue or develop after acute COVID-19 infection. This definition of Long COVID was developed by the Department of Health and Human Services (HHS) in collaboration with CDC and other partners. ​People call Long COVID by many names, including Post-COVID Conditions, long-haul COVID, post-acute COVID-19, long-term effects of COVID, and chronic COVID. The term post-acute sequelae of SARS CoV-2 infection (PASC) is also used to refer to a subset of Long COVID. (Credits: CDC)
Feb 12
37 min
Processed Food Addiction
Continuing a mini-series on obesity, we welcome once again Dr. Ifland.   She founded the online Addiction Reset Community (ARC) in 2016, www.foodaddictionreset.com. The Facebook group, ‘Food Addiction Education’ (2014) and www.foodaddictionresources.com (2014) provide free support.  Reset Week  is the first online live video program for withdrawal (2018).  ARC Manager Training is a program training future Addiction Reset Community leaders (2020). Dr. Ifland is the lead author of the first scholarly description of processed food addiction and definition of addictive foods. Dr. Ifland earned her PhD in addictive nutrition at Union Institute and University (2010); her MBA at Stanford Business School (1978) and her BA in Economics and Political Science at Oberlin College (1974). She currently resides in Seattle. Social Media links:  Facebook - https://www.facebook.com/groups/1806154526275515 ​Twitter  https://twitter.com/JoanIfland ​Instagram  https://www.instagram.com/foodaddictionreset/  
Feb 5
1 hr 21 min
National Childhood Obesity
This week we will discuss the obesity problem for children in the US.  Our guest, once again, is Dr. Joan Ifland.  Dr Ifland has been creating breakthroughs in recovery from food addiction from 1999 with her first popular book to 2018 when her textbook, Processed Food Addiction: Foundations, Assessment, and Recovery was released by CRC Press.   ​ She founded the online Addiction Reset Community (ARC) in 2016, www.foodaddictionreset.com. The Facebook group, ‘Food Addiction Education’ (2014)  and  www.foodaddictionresources.com (2014) provide free support.  Reset Week  is the first online live video program for withdrawal (2018).  ARC Manager Training is a program training future Addiction Reset Community leaders (2020). Dr. Ifland is the lead author of the first scholarly description of processed food addiction and definition of addictive foods. Dr. Ifland earned her PhD in addictive nutrition at Union Institute and University (2010); her MBA at Stanford Business School (1978) and her BA in Economics and Political Science at Oberlin College (1974). She currently resides in Seattle. Social Media links:  Facebook - https://www.facebook.com/groups/1806154526275515 Twitter  https://twitter.com/JoanIfland Instagram   https://www.instagram.com/foodaddictionreset/    Childhood obesity is a complex disease with many contributing factors, on including genetics, eating patterns, physical activity levels, and sleep routines. About 1 in 5 American children has obesity. Compared to children with healthy weight, children with obesity are at a higher risk for asthma, sleep apnea, bone and joint problems, type 2 diabetes, and risk factors for heart disease such as high blood pressure.  "Childhood obesity continues to rise around the world, and the World Health Organization has called it “one of the most serious public health challenges of the 21st century.” Yet the prevalence of childhood obesity appears to vary across countries. Island nations in the Pacific, such as Nauru and the Cook Islands, appear to have the highest obesity rates among children 5 to 19, but the countries Ethiopia and Burkina Faso appear to have the lowest rates. The number of obese or overweight children 5 and younger climbed from 32 million globally in 1990 to 41 million in 2016, according to WHO data. If current trends continue, the number of overweight or obese children in that age group could increase to 70 million by 2025." (CNN Health News)
Jan 29
48 min
Recovering From Surgery in a Rehab Setting
Skilled Nursing care, also known as Post-Acute Rehabilitation, is for those who need short-term care following an injury, surgery, or illness. The goal with this level of care is to successfully transfer patients from hospital to home, or senior living community, by providing the tools and resources for each phase of recovery. A stay at a skilled nursing, rehabilitation, and post-acute care center is meant to be a transitional period to help patients recover and return to their everyday lives. Our Co-Host Ron had shoulder surgery recently and needed this type of care until he could regain use of his "good-arm".  As you probably know from an episode we did (again with Ron as the guest) very early in our podcasting to discuss his life with a disability.  You see, Ron was hit be a motor vehicle as a child and lost the use of one of his arms. You can understand how rehabbing after shoulder surgery would be impossible without help!  He is here to explain that process, and I'd like to report he is now back to his version of 100%!  He is even going to the Vegas-Shoot in a couple of weeks to compete once again in target archery.
Jan 15
20 min
Building Confidence in Children
This week we will discuss the confidence building in children with returning guest, Casey Hersch!   ​ ​Casey Hersch is a licensed clinical social worker, psychotherapist, author, Latin ballroom dancer, health journalist, and animal advocate. She uses holistic and resilience-based models to help children and families cope with trauma, stress, and illness. ​A Regent’s scholar and CSU Chico’s social worker of the year, she has devoted her career to helping children, parents, families, and communities build resilience and minimize the effects of stress, trauma, and adverse childhood experiences throughout the lifespan. During her childhood, Casey witnessed the toll of trauma and stress on her health. She has spent most of her adult life overcoming Crohn’s disease (autoimmune) and mental illness (anxiety), which further motivates her to create resources for children. Her passion for giving voice to the health benefits of animal rescue and pet companionship granted her recognition for excellence by the Cat Writer’s Association. Her work is published in a variety of venues. Casey’s diverse clinical experience as a psychotherapist, child custody investigator, educator, and community organizer inspired I Am Pawso. All too often Casey sees toddlers, tweens, teenagers, and adults who missed out on early interventions. These mental health resources in schools, homes, and communities can reduce the long-term consequences of stress and trauma, such as chronic illness, mental illness, anger and behavior management issues, depression, and violence. Casey’s evidence-based philosophy is simple: When we provide children the lessons and resources they need to build resilience, emotional intelligence, and healthy brain neural pathways, we give them the best opportunities to thrive. I Am Pawso is Casey’s gift to children: An intervention providing them the tools and confidence they need to live healthy and successful lives. ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​       I Am Pawso is a family labor of love. Casey’s rescue cat, Pawso, is the main character. Her husband, Scott, illustrated the book by taking real photographs of Pawso. When Casey is not writing, she is Latin Ballroom dancing, serving her community, and playing with her cats, Pawso and Samba.
Jan 8
27 min
Severe ME-CFS Caregiver
This week we will discuss severe Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).  Our guest is Galen Warden, the mom to six adult children, one being her son James Strazza.  Galen is now a full time caregiver to James due to the severity of his disease.  Here are her words:  "James was a healthy young man until he very slowly, because of medical ignorance and poor advice, became weaker and sicker following a severe case of the Epstein Barr Virus when he was just 19. After a few years, he slowly lost his ability to drive, to stand in his kitchen and prepare food for himself, then to walk more than a few steps, to use an electric wheelchair, and finally, to even sit up if carried onto a commode. He’s been 100% bed bound for three years. What is this bizarre disease that so many medical doctors prefer to pass off as psychological, psychosomatic or self-inflicted? Myalgic Encephalomyelitis was, in the past, known only as Chronic Fatigue Syndrome. An unfortunate name because it’s so easily dismissed as simple chronic fatigue, familiar to many with autoimmune diseases. ME/CFS is entirely different. It’s a disease not known, not taught, but not rare. Just rarely acknowledged, and more rarely understood.... ME appears to be a post-viral disease. The onset can be caused by Epstein Barr, Dengue Fever, Covid 19, and other viral illnesses. Now, research is so urgent because Long Covid is impacting thousands who are unaware of the potential that they could end up like James. Post-viral Covid could easily continue to progress to Severe ME/CFS if patients are not aware of how to manage their overwhelming weakness and fatigue. They must rest and never push themselves. They need the early support of their families to pick up the burden of making meals, driving them, helping them rest as much as possible. Because, if they don’t allow them to rest now, caring for them will become a very heavy burden. These patients, with their desperate families, their disbelieving caregivers and puzzled doctors, are why I’m compelled to add documenting our experience to my long list of weighty obligations."
Jan 1
46 min
Food Safety at the Holidays
This week we will discuss how to avoid toxins when cooking for a crowd.  The following comes straight from the CDC: ​ Prevent Food Poisoning During the Holidays Feasting with family is part of many holiday celebrations. Follow these tips to help prevent food poisoning, or foodborne illness, during the holidays. ​ Keep foods separated. Keep meat, chicken, turkey, seafood, and eggs separate from all other foods at the grocery store and in the refrigerator. Prevent juices from meat, chicken, turkey, and seafood from dripping or leaking onto other foods by keeping them in containers or sealed plastic bags. Store eggs in their original carton in the main compartment of the refrigerator. Cook food thoroughly. Use a food thermometer to make sure meat, chicken, turkey, seafood, and eggs have been cooked to a safe internal temperature to kill germs. Roasts, chops, steaks, and fresh ham should rest for 3 minutes after you remove them from the oven or grill. Keep food out of the “danger zone.” Germs can grow rapidly in the danger zone between 40°F and 140°F. After food is prepared, keep hot food hot and cold food cold. Refrigerate or freeze perishable food like meat, chicken, turkey, seafood, eggs, cut fruit, cooked rice, and leftovers within 2 hours (1 hour if food is exposed to temperatures above 90°F, such as in a hot car). The temperature in your refrigerator should be set at 40°F or below and the freezer at 0°F or below. Use pasteurized eggs for dishes containing raw eggs. Salmonella and other harmful germs can live on both the outside and inside of normal-looking eggs. Many holiday favorites contain raw eggs, including eggnog, tiramisu, hollandaise sauce, and salad dressings. Always use pasteurized eggs when making these and other foods made with raw eggs. Know that raw flour and eggs can have germs. Uncooked dough and batter made with flour or eggs can contain harmful germs, such as E. coli and Salmonella. This includes dough or batter for cookies, cakes, pies, biscuits, pancakes, tortillas, pizza, or crafts. Some companies and stores offer edible cookie dough made with heat-treated flour and pasteurized eggs or no eggs. Read the label carefully to make sure the dough is meant to be eaten without baking or cooking. Thaw your turkey safely. Thaw frozen turkey in the refrigerator, in a sink of cold water (change the water every 30 minutes), or in the microwave. Do not thaw turkey or other foods on the counter. A turkey must thaw at a safe temperature to prevent harmful germs from growing rapidly. Learn more about preparing turkey safely. Wash your hands with soap and water during these key times when you are likely to get and spread germs: Before, during, and after preparing food Before eating food After feeding pets After using the toilet After changing diapers or cleaning up a child who has used the toilet After touching garbage Before and after caring for someone who is sick Before and after treating a cut or wound After blowing your nose, coughing, or sneezing   Some family and friends may be at higher risk for serious food poisoning. Take steps to help prevent them from getting sick this holiday season by choosing safer food options for Adults over 65 Children under 5 Pregnant people People with weakened immune systems
Dec 19, 2023
12 min
Fox G1 Syndrome
This week we are talking about a rare condition, FOXG1.  This  syndrome is a rare genetic neurodevelopmental disorder caused by a mutation in the FOXG1 gene. FOXG1 gene is one of the first and most important genes for early brain development and when impaired, causes cognitive and physical disabilities as well as medical complexities including epilepsy. Every child born with FOXG1 syndrome is unique as FOXG1 manifests as a spectrum where symptoms and severity vary between individuals. Our patient data shows characteristics of children with FOXG1 syndrome include: nonverbal, non-ambulatory, experience seizures, feeding problems, cortical vision impairment, movement disorders, and developmental delays. Less-severely-affected FOXG1 children often present with (ASD) Autism Spectrum Disorder as FOXG1 is an autism related gene. FOXG1 syndrome is found equally among both females and males and is geographically more prevalent where diagnostic testing is more advanced. (credits: The FoxG1 Foundation) Our guest is a mother to a child with FoxG1, Ilissa Reich.  Ilissa is a former fashion executive who transformed her career into being a fierce advocate for families of children with special needs. When her now-3-year-old son, Eli, was diagnosed with FOXG1 Syndrome, a rare brain disorder with no cure, she spun into action and co-founded Believe in a Cure (webelieveinacure.org), a 501(c)(3) non-profit foundation working to develop a treatment for FOXG1. Founded in 2019, Believe has raised millions of dollars and funded over 40 research and development projects around the world. long the way, the foundation has partnered with preeminent institutions ranging from the National Institutes of Health to Harvard, MIT, and Tel Aviv University, to biotechnology companies in Europe, Asia, and the United States. ​Renowned scientists from industry and academia serve on the scientific advisory board of the foundation, and several notable leaders serve on the foundation’s lay advisory council, including former U.S. senators Joe Lieberman and Paul Kirk, the former CEO of Staples Ron Sargent, mediation czar Ken Feinberg, and many more. This journey has opened Ilissa’s eyes to the experiences of countless other families who struggle each day, and despite her own anguish, Ilissa endeavored to create a platform for mothers of kids with special needs to build community and offer support. ​She has appeared on the Today show, in People magazine, and a host of other outlets profiling her efforts. A native Long Islander, Ilissa previously worked in fashion at notable brands Tibi, Free People, Splendid, and Alternative Apparel. She studied business in college at The George Washington University. She lives in Port Washington with her husband, Scott, and their three children. ​ When asked: 'What has enabled you to be successful?' she responded- “I always aspire to be a good role model for my children. I want to be someone they’re proud of.”
Dec 11, 2023
24 min
M-RNA Vaccines
This week we will discuss M-RNA vaccines.  Our guest is Thomas VanCott, PhD.  Thomas VanCott is currently the Chief Scientific Officer for Combined Therapeutics, a Boston based biotech company developing targeted mRNA therapies.  Prior to this he served as the Chief Technology and Strategy Officer for Catalent Cell & Gene Therapy, a global CDMO manufacturing viral vectors for gene and cell therapies as wells as plasmid DNA & mRNA platforms based in Baltimore, MD.  He was responsible for strategically enhancing CMC services to meet the market demand of increasingly complex gene and cell therapy products as well as leading the product development and internal R&D teams.  Prior to this, he was the CEO for 10 years at a Maryland-based CMO/CRO (ABL) where he was responsible for the strategic international growth of the company.  He has been involved in biologics product development for over 25 years.  He has a PhD in physical chemistry and started his career as a Captain in the US Army stationed at Walter Reed Army Institute of Research (WRAIR) studying and developing HIV vaccines for international deployment from initial construction through preclinical development, GMP manufacturing and clinical development. ​Vaccines help prevent infection by preparing the body to fight foreign invaders (such as bacteria, viruses, or other pathogens). All vaccines introduce into the body a harmless piece of a particular bacteria or virus, triggering an immune response. Most vaccines contain a weakened or dead bacteria or virus. However, scientists have developed a new type of vaccine that uses a molecule called messenger RNA (mRNA) rather than part of an actual bacteria or virus. Messenger RNA is a type of RNA that is necessary for protein production.  Once cells finish making a protein, they quickly break down the mRNA. mRNA from vaccines does not enter the nucleus and does not alter DNA. ​mRNA vaccines work by introducing a piece of mRNA that corresponds to a viral protein, usually a small piece of a protein found on the virus’s outer membrane. (Individuals who get an mRNA vaccine are not exposed to the virus, nor can they become infected with the virus by the vaccine.) By using this mRNA, cells can produce the viral protein. As part of a normal immune response, the immune system recognizes that the protein is foreign and produces specialized proteins called antibodies. Antibodies help protect the body against infection by recognizing individual viruses or other pathogens, attaching to them, and marking the pathogens for destruction. Once produced, antibodies remain in the body, even after the body has rid itself of the pathogen, so that the immune system can quickly respond if exposed again. If a person is exposed to a virus after receiving mRNA vaccination for it, antibodies can quickly recognize it, attach to it, and mark it for destruction before it can cause serious illness. Like all vaccines in the United States, mRNA vaccines require authorization or approval from the Food and Drug Administration (FDA) before they can be used. Currently vaccines for COVID-19, the disease caused by the SARS-CoV-2 coronavirus, are the only authorized or approved mRNA vaccines. These vaccines use mRNA that directs cells to produce copies of a protein on the outside of the coronavirus known as the “spike protein”. Researchers are studying how mRNA might be used to develop vaccines for additional diseases.  (credits: Medline Plus)
Dec 4, 2023
47 min
Medically Fragile in a Pandemic
This week we will discuss how important it is to continue masking and keeping away from crowds as a chronically ill or immunocompromised person.  Our guest today is Veronica Hanway.  Immunocompromised individuals are not optimally protected by COVID-19 vaccines and potentially require additional preventive interventions to mitigate the risk of severe COVID-19. Veronica, a Latina mother and first generation Geography PhD student in her second year, is 35 years old and has had a lifetime of chronic migraines. With her first migraine at just three years old, she is no stranger to migraine symptoms, MRIs, CTs, neurology appointments, and treatments.  She is an advocate for public health and community care during the ongoing SARS CoV 2 (Covid 19) pandemic. Veronica is committed to protecting her immunocompromised child and her high risk family while also continuing her National Science Foundation Graduate Research Fellowship doctoral studies. Her passions include spending time with her family, advocating for safer spaces for disabled, high risk, immunocompromised, and BIPOC communities, learning how people have adapted to avoiding Covid infections and reinfections, and how people have created Coviding communities. She loves painting, singing, having fun, and reading with her son and partner. She is committed to helping others know that they aren't alone in navigating health issues while the effects of climate change and pandemic rage on.   
Nov 27, 2023
30 min
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