WCG Talks Trials
WCG Talks Trials
WCG
Sarah Tompkins, on having Ehlers-Danlos Syndrome, having a mis-understood disease, taking a lead in advocacy
22 minutes Posted Jan 13, 2020 at 8:00 pm.
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Show notes

In this episode, Sarah Tompkins, Patient Advocate of Ehlers-Danlos Syndrome, chats with WCG’s President of Patient Advocacy, Steve Smith. During their discussion, Sarah shares with us her experience being a patient with a genetic rare disease who is involved in a clinical trial.