In this episode, Hsien talks with Brenda Blais, lifelong caregiver and disability rights advocate, about caring for her daughter Nikki, who lived with complex medical needs for nearly 30 years. Brenda shares how she found her voice as an advocate, partnered with care teams, and kept Nikki’s joy and quality of life at the center of her care. She also reflects on Nikki’s end-of-life journey and offers practical advice for caregivers and the people who support them. 
 
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/

S13: Episode 142: Munira Premji: Cancer, Survivorship and the Seven Keys

This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care researcher, as they share real-life stories to explain the 7 keys to being hopeful and prepared when facing serious illness.For more information visit: waitingroomrevolution.comOur theme song is Maypole by Ketsa.