Marlo discusses the weight of a TSC diagnosis and all it's implications.  From diagnosis during pregnancy to behaviors and school related issues, seizure frustrations, med management, healthcare professionals and more.  She narrates the difficulty of living with the uncertainty that can be a part of TSC management and how the family works together to cope.

TSC TALKS Episode 10 TSC Mom Renée -A Canadian Perspective w/non verbal son.

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio &amp; video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.