The Sunflower Conversations
The Sunflower Conversations
Hidden Disabilities Sunflower
Epidermolysis Bullosa with Karen Thackray, DEBRA UK and Lisa Irvine
52 minutes Posted Feb 23, 2025 at 1:00 am.
Understanding Epidermolysis Bullosa (EB)
Living With Epidermolysis Bullosa Challenges
Genetics and Care of Dominant EB
Advocating for Individuals With EB
Raising Awareness for Epidermolysis Bullosa
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Karen Thackray from DEBRA UK and Lisa Irvine joined us to discuss the rare skin condition epidermolysis bullosa (EB), sometimes known as butterfly skin. Lisa and her daughter live with EB and offer first-hand insights into the genetic skin condition that causes painful blisters. Karen breaks down the four main types of EB and their varying impacts. Through our conversation, we aim to raise awareness and foster a deeper understanding of EB as a dynamic disability that causes severe pain, as we...