Show notes
Sickle cell disease (SCD) is the most common blood disorder worldwide. About 7 million people have been diagnosed with SCD, and about 100 million people have sickle cell trait. Around 300,000 babies are born with SCD each year. For a rare disease, SCD is quite common, yet patients with SCD are still facing discrimination from funders, researchers, and medical professionals. Still, today, medical professionals are not thoroughly educated on how painful living with SCD can be. In this episode, Joel Helle, vice president of physician services at CVS Health, explains how medical professionals are still behind on SCD awareness. Ahmar Zaidi, SCD advocate and medical director at Agios Pharmaceuticals, talks about his experience as a medical professional working with SCD patients. Our previous guests, Dr. Lewis Hsu, Justina Williams, Dr. Carolyn Rowley, and Andre Harris, talk about the discrimination SCD patients face and how we can help end it.CLIP SOURCESDon Lemon on Floyd arrest: This is how long 9:29 feels likeBlack Lives Matter protesters stage marches around the worldGeorge Floyd killing sparks worldwide protests against racism | DW News'I can't breathe!' Large crowd of protesters marches and chants through downtown LexingtonWorldwide protests honor George Floyd and Black Lives Matter in defiance of coronavirus fearsNHS sickle cell patients face barriers to new treatment#sicklecelldisease #paincrisis #racism *Tips to Get Better Care while in the hospital*MUSICImbre-jordan-critz-musicbed-licensedEvergreen-blake-ewing-musicbed-licensedOpen-waters-instrumental-lael-musicbedIgnition-why-we-wander-musicbed-licensedA-bed-for-a-sobering-monologue-in-f-aural-method-musicbed-licensedFamiliar-patterns-async-ross-musicbed-licensed742-am-lowercase-noises-remix-hotel-neon-musicbed-licensedthanksgiving-sam-ock-musicbedprehistoria-uncle-skeleton-musicbedtell-me-slo-loris-musicbedSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.