Show notes
Al Freedman“We’re lucky to have our kids to however long we have them, and that’s how I feel about my son… think about what our kids can do.” - Dr. Al FreedmanHaving a support system from friends and families for our people who are diagnosed with SMA is the most wonderful way we can build a better community for them.We are joined by Dr. Al Freedman who is a psychologist by profession and a loving father to his son, Jack, who has SMA.Listen in to our discussion about the following topics:Dr. Freedman’s inspiring story about his son, Jack (0:54/ 3:41)What advice we can share to families with children diagnosed with SMA (1:30)Global SMA conference by Cure SMA (3:30)The SMA Community and Support Groups (5:02)Upcoming SMA conference with Dr. Freedman in Australia (5:49)Peer-to-peer discussions between kids with SMA (6:55)Stigma around SMA (Spinal Muscular Atrophy) (8:08)Parenting advice from Dr. Freedman (8:56)And there are more discussions at the end of this episode!Know more about Dr. Al Freedman at http://www.drfreedman.com/Cure SMA - http://www.curesma.org/Call us (03) 9796 5744Email us at [email protected] our website at http://www.smaaustralia.org.auFacebook Page: https://www.facebook.com/SpinalMuscularAtrophyAustralia
