Sickboy
Sickboy
CBC
Fighting IFAP Syndrome with love and Capoeira
54 minutes Posted Jun 28, 2021 at 4:10 am.
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Sapo and Lorena are the loving parents of little Nauê. Nauê was born with Ichthyosis follicularis, alopecia, and photophobia AKA IFAP syndrome. An extremely rare condition with a shortened life expectancy. Caring for a chronically ill child can be draining. But Sapo and Lorena have found a way of coping with the stress and connecting to their roots. Capoeira, a playful mix of martial arts and dance from their homeland, which they have immersed their son into to encourage play, love and courage.