Deane is a strapping, young Army engineer living diagnosed with ALS at 30. Given 2-5 years, his diagnosis turned his life upside down. Ever the fighter, Deane started the ALS Burpee Challenge to raise money and is advocating for a Rare Disease Strategy so folks like him can access effective treatment here in Canada instead of having to travel abroad. Still, his treatments overseas did have one benefit- opening his eyes to the wonder of the bidet.