A new research review examines how people with long Covid have struggled to get information about their condition. It says patients’ experiences seeking information about their symptoms can be described as frustrating, uncertain, and complex. We speak with the lead researcher of the study, Simran Purewal, who is at the Pacific Institute on Pathogens, Pandemics, and Society at Simon Fraser University and senior scientist Kaylee Byers, also from PIPPs.