RealTalk MS
RealTalk MS
Jon Strum
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
Episode 169: MSTranslate with Brett Drummond
Joining me this week is Brett Drummond, a scientist in Australia who stepped away from his lab to develop an online resource designed to bridge the gap between the MS patient community and the MS research community. The result of his efforts is MSTranslate. We're talking about this excellent curated MS information resource, and Brett even shares some insights into the MS research that he finds particularly exciting.
Nov 23
39 min
Episode 168: Remyelination in MS with Dr. Jeffrey Cohen and Dr. Ian Duncan
Today, remyelination holds real promise as a strategy for restoring lost function and slowing or even stopping MS progression.  This week, we're taking a deep dive into the current state of remyelination research.  Joining me are Dr. Jeffrey Cohen, the director of the Cleveland Clinic’s Mellen Center for Multiple Sclerosis Treatment and Research, and Dr. Ian Duncan, a neuroscientist at the University of Wisconsin-Madison and the recipient of the 2020 Dystel Prize for MS Research.
Nov 16
33 min
Episode 167: A Veteran's MS Journey with Karla Clay, Capt USAF
November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS, and joining me on the podcast is Karla Clay, an Air Force veteran, and a National Veterans Wheelchair Games multiple medal winner. We're talking about the life-changing turn that Karla's MS journey ended up taking.
Nov 9
33 min
Episode 166: Managing MS-Related Fatigue with Dr. Bardia Nourbakhsh and Dr. Kathy Zackowski
Fatigue is considered to be the most common MS symptom and also one of the most disabling because fatigue can interfere with every aspect of someone's life -- at home, at work, in their relationships -- in every way, fatigue can have a profound impact on your quality of life. Today, we're talking about how to best manage MS-related fatigue with two experts on the subject, Dr. Bardia Nourbakhsh, and Dr. Kathy Zackowski.
Nov 2
46 min
Episode 165: Understanding MS Clinical Research with Dr. Sandi Cassard and Diane Kramer
When it comes to MS and most every other chronic illness, clinical research is the common denominator of all medical progress. This week, we're breaking down the details of MS clinical research with my guests, Dr. Sandi Cassard, a research associate in the Neurology department at Johns Hopkins School of Medicine, and Diane Kramer, who has participated in more than 20 research studies since being diagnosed with MS in 2010.
Oct 28
38 min
Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell
MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States, but those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, and pediatric MS expert Dr. Brenda Banwell.
Oct 19
44 min
Episode 163: MSVirtual2020 Research Wrap-Up with MS Society Executive VP of Research Dr. Bruce Bebo
The ECTRIMS (European Committee for Treatment & Research in MS) meeting is the largest MS research conference in the world. This year, of course, the ECTRIMS conference was virtual, and so was my conversation with Dr. Bruce Bebo, the Executive Vice President of Research at the National MS Society. Join us as we take a deep dive into the research breakthroughs that will lead to treatments designed to stop MS progression, restore lost function, and end MS forever.
Oct 12
29 min
Episode 162: MS Conference Updates with EJ Levy and Dr. Kathy Zackowski
We're in the midst of the fall MS conference season, and while all the conferences are virtual, there's still lots of news to share. This week, we're talking with EJ Levy, the Founder and President of MS Hope for a Cure, about Big October 2020.      We're also talking about MS rehabilitation science with Dr. Kathy Zackowski, the Senior Director of Patient Management, Care, & Rehabilitation Research at the National Multiple Sclerosis Society. Our wide-ranging conversation includes updates from the 10th International Symposium on Gait & Balance in MS, rehabilitation for people living with progressive MS, and evidence-based best practices when it comes to the physical wellness, nutritional wellness, and emotional wellness of people living with MS.   We have a lot to talk about! Are you ready for RealTalk MS??! It's MS research conference season!  :22 Big October starts today  :45 My interview with EJ Levy, the Founder & President of MS Hope for a Cure    2:13 Participate today in the National MS Society's Economic Impact Survey (and why it's so important!)  16:57 10th International Symposium on Gait & Balance in MS  18:48 My Interview with Dr. Kathy Zackowski  20:18 Share this episode  36:59 Donate to the National MS Society COVID-19 Response Fund  37:20 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Big October 2020 Health Behaviors, Wellness, and Multiple Sclerosis Amid COVID-19 National MS Society Survey: The Economic Impact of MS National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalk MS Episode 162 Guests: EJ Levy & Dr. Kathy Zackowski Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, BigOctober2020, RealTalkMS Privacy Policy
Oct 5
39 min
Episode 161: Sleep Issues and MS with Dr. Katie Siengsukon
More than half the people living with MS report significant disruptions in their sleep and difficulty maintaining a consistent sleep schedule. And that can lead to additional health issues along with an overall decline in quality of life and wellbeing. My guest is Dr. Katie Siengsukon, Director of the Sleep, Health, and Wellness Lab at the University of Kansas Medical Center. We're talking about how sleep problems affect MS and the steps you can take if you're experiencing sleep problems.
Sep 28
36 min
Episode 160: The Emotional Impact of the Pandemic on People Living with Progressive MS with Dr. Anthony Feinstein
A research team found themselves at the right place at the right time -- conducting a different progressive MS study. They pivoted to investigate the emotional impact of the COVID-19 pandemic on people living with progressive MS. My guest is Dr. Anthony Feinstein, a professor of psychiatry at the University of Toronto and a neuropsychiatrist. He is also the principal investigator of the CogEx study, and he's sharing the newly published results of his team's work.
Sep 21
24 min
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