What a powerhouse mom and rare disease advocate - we are thrilled to welcome Michelle to the studio this week. We talk about her daughter Hailey and her ultra-rare Jordan's disease (which is means it affects less than 1-50K people) as well as the power of 'community' and fight to be seen! https://mamabearforrare.com/https://jordansguardianangels.org/Jordan's Syndrome Letters + Numbers: PPP2R5D

Episode 35: Molly Bice Jackson | Child Loss

An exploration of the profound journey of loss, from the enduring power of love, to the unexpected moments of laughter, and everything in between. Join us for candid conversations, led by a child-loss mom and the incredible community that has supported her since day one. We’ll delve deep into the unique perspective and heartfelt advice of caregivers, friends, family, and the child-loss community. Together, we unlock the raw and complex experience of loss through the shared stories of resilience, love, and the healing strength that emerges.