Rarely Normal
Rarely Normal
Katelyn Nugent and Lindsay Weekes
S1:E6 Jillian Smith (parent)
39 minutes Posted Feb 20, 2024 at 12:12 am.
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In this third week of Rare Disease Month, we connect with Jillian Smith whose pre-teen son has ALD (adrenoleukodystrophy). From testing to diagnosis to advocacy, she's a force for creating awareness of and support for ALD.