PWS United
PWS United
PWSA | USA
Ep102 Pulse 151: Disability Pride, Podcast Changes, Voices on VYKAT 6
53 minutes Posted Jul 21, 2026 at 10:00 am.
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Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
Join our Newsletter - Prader-Willi Syndrome Association | USA
Pulse Header
The Road to the Americans with Disabilities Act (ADA) - Prader-Willi Syndrome Association | USA
What Does Disability Pride Month Mean to Me? - Prader-Willi Syndrome Association | USA
Spotlight on PWS
Share Your Story - Prader-Willi Syndrome Association | USA
Resource Spotlight
Medical-Reference-Guide-for-Parents-Rebranded-2022.pdf
Events | Fundraisers
Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign
Residential Providers Conference - Prader-Willi Syndrome Association | USA
PWS Community Day Registration (Los Angeles) Survey
PWS Community Day Registration (San Franscisco Bay Area) Survey
PWSA Events
Podcast
Ep101: Transitioning PWS to Adulthood | PWS United
Advocacy
Meet Our Equity Committee: Ashish Rishi - Prader-Willi Syndrome Association | USA
Calling Nevada PWS Families - Prader-Willi Syndrome Association | USA
Family Support
Why We Gather - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Deconditioning After Hospital Stay - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
MedPanel Research: survey.alphadetail.com/wix/8/p451407915088.aspx
PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA
 
Intro Music: https://www.bensound.com/  License certificate #2242442 
Music: www.purple-planet.com
Disclaimer for show notes: 
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.