The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Pulse Header2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USACaribe Royale Resort | Resort in Orlando Florida | Official Site(7) Facebook Live | FacebookSpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightUnderstanding Constipation in Prader-Willi SyndromeEvents | FundraisersPWS Community Day Registration (Los Angeles) SurveyPWS Community Day Registration (San Franscisco Bay Area) SurveyPWS Roadshow Heading to Spokane, Washington, July 11: Summer Tour Breaks Isolation and Builds 'Instant Villages' Across the Northwest - Prader-Willi Syndrome Association | USAPWSA EventsPodcastEp99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha | PWS UnitedAdvocacyCalling Nevada PWS Families - Prader-Willi Syndrome Association | USAAccess to Services for Individuals with PWS in Georgia SurveyFamily SupportConference Recap from a Grateful Mom and a Happy Daughter - Prader-Willi Syndrome Association | USAPrader-Willi Syndrome Association of Minnesota | PWSA-MNAsk Nurse Lynn: Supporting a Long Life with PWS - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchMedPanel Research: survey.alphadetail.com/wix/8/p451407915088.aspxTREND Community: Shedding Light on PWS and Sleep - Understanding CataplexyPWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USAAnnouncementsPWSA | USA Board of Directors Member Spotlight: John Lens - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/  License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.