PWS United
PWS United
PWSA | USA
Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT Testimonial
41 minutes Posted Jun 23, 2026 at 10:00 am.
0:00
41:30
Download MP3
Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
Pulse Header
2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA
Caribe Royale Resort | Resort in Orlando Florida | Official Site
Spotlight on PWS
Share Your Story - Prader-Willi Syndrome Association | USA
Resource Spotlight
How To Travel with Refrigerated Medication - PWSA USA
Events | Fundraisers
Mom’s Hike: 2026 Event Series
[email protected]
Home - DADventure Retreat
PWSA Events
Podcast
Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission | PWS United
Advocacy
Advocacy & Awareness - Prader-Willi Syndrome Association | USA
Family Support
Appreciation for Fathers and How They Show Up for PWS - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Anesthesia and Steroids - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today
PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA
Announcements
PWSA | USA Board of Directors Member Spotlight: John Lens - Prader-Willi Syndrome Association | USA
 
Intro Music: https://www.bensound.com/  License certificate #2242442 
Music: www.purple-planet.com
Disclaimer for show notes: 
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.